Sinnema G, Bonarius J C, Stoop J W, van der Laag J
Acta Paediatr Scand. 1983 May;72(3):427-32. doi: 10.1111/j.1651-2227.1983.tb09741.x.
In a survey-study of all living Dutch patients with cystic fibrosis (CF) born before 1971 data have been gathered on sex, age, age at diagnosis; height and weight; treatment and social development. The group consists of 102 schoolchildren (8-11 years), 179 adolescents (12-21 years) and 28 young adults (22-40 years). Males are in the majority, especially in the 12 to 17 age group (61%). In 51% of all patients CF was diagnosed before the age of 2, and in 75% before the age of 5. Male CF patients are on average 6 cm (0.84 SD) shorter than normal and female patients 3 cm (0.48 SD). As far as weight for height is concerned, 54% of the CF patients fall below the 10th percentile. Weight for height is slightly lower in females than in males. CF patients usually leave primary school at an older age than their healthy peers. In comparison to healthy adolescents of the same age, adolescents with CF attend full-time day-school for a longer time, more of them receive general education and fewer take vocational training. Adolescents and young adults with CF do not stay longer than normal in the protective environment of their parental home.
在一项针对所有1971年以前出生的荷兰囊性纤维化（CF）在世患者的调查研究中，收集了有关性别、年龄、诊断年龄、身高和体重、治疗及社会发展情况的数据。该群体包括102名学童（8至11岁）、179名青少年（12至21岁）和28名青年（22至40岁）。男性占多数，尤其是在12至17岁年龄组（61%）。51%的患者在2岁前被诊断出患有CF，75%在5岁前被诊断出。男性CF患者平均比正常人矮6厘米（标准差0.84），女性患者矮3厘米（标准差0.48）。就身高体重而言，54%的CF患者低于第10百分位。女性的身高体重略低于男性。CF患者通常比同龄健康人晚离开小学。与同龄健康青少年相比，患有CF的青少年全日制上学的时间更长，接受普通教育的人数更多，接受职业培训的人数更少。患有CF的青少年和青年在父母家中的保护环境中停留的时间并不比正常人长。
