地中海贫血患儿家长群体中的家庭反应及其管理
Family reactions and their management in a parents group with beta-thalassaemia.
作者信息
Tsiantis J, Xypolita-Tsantili D, Papadakou-Lagoyianni S
出版信息
Arch Dis Child. 1982 Nov;57(11):860-3. doi: 10.1136/adc.57.11.860.
The parents of children with beta-thalassaemia displayed various patterns of emotion (guilt, death anxiety, denial of feelings) and their behaviour towards the child was inappropriate (overprotective, conspiracy of silence); this could affect his psychosocial development and lead to tension within the family. Some parents were overdemanding and even hostile to hospital staff, thus making the management of cases difficult. The therapeutic team has tried to concentrate on these problems in order to clarify them and give support to the families. This has facilitated communication within the family as well as between the family and hospital staff, and had diminished the problems.
β地中海贫血患儿的父母表现出各种情绪模式（内疚、死亡焦虑、情感否认），他们对孩子的行为也不恰当（过度保护、保持沉默）；这可能会影响孩子的心理社会发展，并导致家庭内部关系紧张。一些父母要求过高，甚至对医院工作人员怀有敌意，从而使病例管理变得困难。治疗团队试图专注于这些问题，以弄清楚问题并为家庭提供支持。这促进了家庭内部以及家庭与医院工作人员之间的沟通，并减少了问题。
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