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电子辅助设备:它们对高位四肢瘫痪者生活质量的影响。

Electronic assistive devices: their impact on the quality of life of high level quadriplegic persons.

作者信息

Efthimiou J, Gordon W A, Sell G H, Stratford C

出版信息

Arch Phys Med Rehabil. 1981 Mar;62(3):131-4.

PMID:7235899
Abstract

The impact of electronic assistive devices (ie, the environmental control system or ECS) on the day-to-day living of high-level quadriplegics (C3-C5) was studied. Twenty male quadriplegic persons (7 ECS users and 13 nonusers) were interviewed using the following material: Activity Pattern Indicators (APIs), Bell Adjustment Inventory, Locus of Control, Multiple Affect Adjective Checklist and McClelland's adaptation of the Thematic Apperception Test. It was found that ECS impact was most clearly demonstrated in the API results. The ECS users made greater use of a variety of adaptive devices to function relatively more independently and with minimal assistance. The users participated in more activities and spent considerably more time educating themselves than the nonusers, who more frequently participated in quiet activities and spent more time in passive recreational activities in residence. Since the ECS and other adaptive devices have a positive impact on the lives of users, patients should be exposed to them as early as possible in their rehabilitation programs to promote their acceptance. Additionally, home planning and equipment ordering should be done conjointly before discharge so that patients and their families do not become acclimated to a less safe and less efficient way of functioning. An assessment protocol consisting of both intrapsychic and behavioral measures (similar to the one presented in this article) is recommended as a comprehensive and systematic way of evaluating both the short- and long-term effects of using assistive devices.

摘要

研究了电子辅助设备(即环境控制系统或ECS)对高位四肢瘫痪者(C3 - C5)日常生活的影响。使用以下材料对20名男性四肢瘫痪者(7名ECS使用者和13名非使用者)进行了访谈:活动模式指标(API)、贝尔适应量表、控制点、多重情感形容词检查表以及麦克利兰对主题统觉测验的改编版。研究发现,ECS的影响在API结果中表现得最为明显。ECS使用者更多地使用各种适应性设备,以相对更独立且在最少协助的情况下发挥功能。与非使用者相比,使用者参与了更多活动,并且花费了更多时间进行自我学习,而非使用者更频繁地参与安静活动,在住所中花费更多时间进行被动娱乐活动。由于ECS和其他适应性设备对使用者的生活有积极影响,因此在康复计划中应尽早让患者接触这些设备,以促进他们的接受度。此外,应在出院前联合进行家庭规划和设备订购,以便患者及其家人不会适应安全性较低和效率较低的功能方式。建议采用一种由心理内部和行为测量组成的评估方案(类似于本文中提出的方案),作为评估使用辅助设备的短期和长期影响的全面而系统的方法。

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