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听障幼儿家庭:诊断的影响

Families of young, hearing-impaired children: the impact of diagnosis.

作者信息

Williams D M, Darbyshire J O, Brown B

出版信息

J Otolaryngol. 1978 Dec;7(6):500-6.

PMID:731776
Abstract

In 1976--77 there were 15 families with young hearing-impaired children, living in Kingston or within a radius of 50 miles, who participated in a study, funded by the Atkinson Charitable Foundation, to evaluate the impact which the diagnosis of deafness made upon them and their families. The sample was too small for sophisticated statistical analysis, but certain indications are provided by the research. The age at which the children were diagnosed was remarkably late and physicians and other involved professionals were felt to be uncomfortable in facing the parents whose children had hearing losses. Parents willingly admitted their need for more guidance at the time of diagnosis but had, in many cases, become somewhat complacent in their responses to their children and their needs. A strong source of support at the preschool stage was felt to be the home-visiting teacher service provided by the Ministry of Education. A need for more in-home guidance was felt by most parents when their children reached school age. Similarly, a need was expressed for a locally based correspondence course.

摘要

1976至1977年间,有15户育有听力受损幼儿的家庭居住在金斯敦或半径50英里范围内,他们参与了一项由阿特金森慈善基金会资助的研究,以评估耳聋诊断对他们及其家庭产生的影响。该样本规模过小,无法进行复杂的统计分析,但该研究提供了某些迹象。孩子们被诊断出耳聋的年龄相当晚,而且医生和其他相关专业人员在面对孩子听力受损的家长时感到不自在。家长们乐意承认在诊断时需要更多指导,但在很多情况下,他们对孩子及其需求的反应已变得有些自满。在学前阶段,一个强有力的支持来源被认为是教育部提供的家访教师服务。当孩子达到上学年龄时,大多数家长感到需要更多的居家指导。同样,人们表示需要一门基于当地的函授课程。

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