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[囊性纤维化患儿的心理学、精神病理学及社会问题]

[Psychology, psychopathology and social problems of children with cystic fibrosis].

作者信息

Corboz R, Schenker R, Bachmann P

出版信息

Helv Paediatr Acta. 1980 Oct;35(5):477-88.

PMID:7440231
Abstract

The authors examined 33 children aged 7 to 17 years who suffered from cystic fibrosis. This was possible in a holiday camp especially organized for such children. In two or more sessions different tests of performance and projection were made. Furthermore, case histories, the present physical state of the children, the observations of the nursing staff and the answers of the parents to a questionnaire were used as components of the examination. 27 children (88%) showed a moderate or severe psychoreactive disturbance directly related with the disease. There is a connection between the severity of the illness and the degree of the psychoreactive disturbance. 12 children (36%) showed a noticeable to severe psychoorganic disturbance of performance. All psychoorganically disturbed children suffered from a moderate or severe form of cystic fibrosis. 14 children (47%) suffered from further non specific psychoreactive disorders, partially with neurotic or psychosomatic symptoms which are without exception causally related to a disturbed social background. In any case, incidence and even severity of psychopathological findings in children with cystic fibrosis cannot be ignored and must be taken into consideration at the elaboration of a therapeutical plan. Holiday camps with full comprehensive care and control of the cystic fibrosis children are of great importance for them and their parents, especially with regard to the mental hygiene.

摘要

作者对33名7至17岁患囊性纤维化的儿童进行了检查。这在一个专门为这类儿童组织的度假营中得以实现。在两个或更多环节中进行了不同的表现和投射测试。此外,病历、儿童目前的身体状况、护理人员的观察结果以及家长对问卷的回答都被用作检查的组成部分。27名儿童(88%)表现出与疾病直接相关的中度或重度心理反应障碍。疾病的严重程度与心理反应障碍的程度之间存在关联。12名儿童(36%)表现出明显至重度的心理器质性表现障碍。所有心理器质性障碍儿童都患有中度或重度形式的囊性纤维化。14名儿童(47%)患有进一步的非特异性心理反应障碍,部分伴有神经症或心身症状,无一例外都与社会背景紊乱存在因果关系。无论如何,囊性纤维化儿童心理病理表现的发生率乃至严重程度都不容忽视,在制定治疗方案时必须予以考虑。为囊性纤维化儿童提供全面综合护理和管控的度假营对他们及其家长非常重要,尤其是在心理卫生方面。

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