Drotar D, Doershuk C F, Stern R C, Boat T F, Boyer W, Matthews L
Pediatrics. 1981 Mar;67(3):338-43.
The adjustment of children with cystic fibrosis as rated by parents and teachers was compared to that of physically healthy siblings, normal children, and other chronically ill children. The findings indicated that children with cystic fibrosis achieved an age-adequate level of adjustment at home and school. Adjustment was largely unrelated to the severity of cystic fibrosis. As a group, chronically ill children had less adequate adjustment as rated by parents. However, severe adjustment problems were relatively rare. These findings are consistent with a growing body of literature which suggests that children with cystic fibrosis can cope reasonably well with life tasks and that emotional disturbance is not an inevitable consequence of the disease. Future studies of the cystic fibrosis population should study factors which differentiate adjusted from maladjusted children.
将父母和教师评定的囊性纤维化患儿的适应情况与身体健康的兄弟姐妹、正常儿童及其他慢性病患儿的适应情况进行了比较。研究结果表明，囊性纤维化患儿在家庭和学校中达到了与其年龄相适应的适应水平。适应情况在很大程度上与囊性纤维化的严重程度无关。总体而言，慢性病患儿经父母评定的适应情况较差。然而，严重的适应问题相对较少见。这些研究结果与越来越多的文献一致，这些文献表明囊性纤维化患儿能够较好地应对生活任务，且情绪障碍并非该疾病不可避免的后果。未来对囊性纤维化患者群体的研究应探讨区分适应良好与适应不良儿童的因素。
