Koning C J, Maillé A R, Stevens I, Dekker F W
Department of Psychiatry, Leiden University, The Netherlands.
J Asthma. 1995;32(5):355-63. doi: 10.3109/02770909509082760.
To date, guidelines and consensus reports on quality care for asthma and chronic obstructive pulmonary disease (COPD) are mainly based on research and opinions of care providers. Patients' viewpoints on good medical care have rarely been studied. We designed a postal questionnaire to study the needs of patients with asthma or COPD for medical care provided by general practitioners and lung physicians. A total of 121 patients filled out the questionnaire, which included 111 items about needs. Although generally satisfied, patients reported several unfulfilled needs. Main topics were the need for information about diagnostic tests, prognosis, and long-term use of medication. In addition, patients wanted more written information about the nature of their disease. One-third of patients wanted more participation in decisions about their treatment. These results suggest the quality of medical care for patients with asthma or COPD can be improved by adjusting provided care to needs expressed by patients.
迄今为止，关于哮喘和慢性阻塞性肺疾病（COPD）优质护理的指南和共识报告主要基于护理提供者的研究和观点。很少有研究涉及患者对优质医疗护理的看法。我们设计了一份邮政问卷，以研究哮喘或COPD患者对全科医生和肺科医生提供的医疗护理的需求。共有121名患者填写了问卷，其中包括111项关于需求的问题。尽管总体上感到满意，但患者报告了一些未得到满足的需求。主要主题包括对诊断测试信息、预后以及药物长期使用信息的需求。此外，患者希望获得更多关于其疾病性质的书面信息。三分之一的患者希望更多地参与有关其治疗的决策。这些结果表明，通过根据患者表达的需求调整所提供的护理，可以提高哮喘或COPD患者的医疗护理质量。
