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1
Improving care of dying children.改善对濒死儿童的护理。
West J Med. 1995 Sep;163(3):258-62.
2
Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.父母对患癌濒死儿童的症状、生活质量、死亡特征及临终决策的看法。
Klin Padiatr. 2008 May-Jun;220(3):166-74. doi: 10.1055/s-2008-1065347.
3
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Minerva Pediatr. 2001 Jun;53(3):161-9.
4
Bereavement: role of the nurse in the care of terminally ill and dying children in the pediatric intensive care unit.丧亲之痛:儿科重症监护病房护士在照顾绝症患儿及临终儿童中的角色
Crit Care Med. 1993 Sep;21(9 Suppl):S391-2.
5
Sibling involvement at the end of life.临终时兄弟姐妹的参与。
J Pediatr Oncol Nurs. 2005 Jul-Aug;22(4):222-6. doi: 10.1177/1043454205276956.
6
Care of the dying child. The demands of ethics.
Second Opin. 1993 Apr;18(4):25-39.
7
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Hastings Cent Rep. 1995 Nov-Dec;25(6):S12-14.
8
Improving end-of-life care in the intensive care unit: what's to be learned from outcomes research?改善重症监护病房的临终关怀:从结局研究中能学到什么?
New Horiz. 1998 Feb;6(1):110-8.
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Neonatal staff and advanced practice nurses' perceptions of bereavement/end-of-life care of families of critically ill and/or dying infants.新生儿医护人员及高级执业护士对危重症和/或濒死婴儿家庭丧亲之痛/临终关怀的看法。
Am J Crit Care. 2004 Nov;13(6):489-98.
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Soc Sci Med. 2009 Oct;69(7):1056-62. doi: 10.1016/j.socscimed.2009.07.007. Epub 2009 Aug 18.

引用本文的文献

1
Pediatric Deaths Attributed to Complex Chronic Conditions over 10 Years in Korea: Evidence for the Need to Provide Pediatric Palliative Care.韩国 10 年来与复杂慢性疾病相关的儿科死亡人数:提供儿科姑息治疗的必要性证据。
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2
Characteristics of deaths occurring in hospitalised children: changing trends.住院儿童死亡特征:变化趋势
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本文引用的文献

1
The costs of a pediatric hospice program.一个儿科临终关怀项目的成本。
Public Health Rep. 1993 Jan-Feb;108(1):37-44.
2
Hospice care for children: past, present, and future.
J Pediatr Oncol Nurs. 1993 Jul;10(3):93-8. doi: 10.1177/104345429301000304.
3
Caring for gravely ill children.照顾重症儿童。
Pediatrics. 1994 Oct;94(4 Pt 1):433-9.
4
The cost of home care for dying children.临终儿童的家庭护理费用。
Med Care. 1982 Nov;20(11):1154-60. doi: 10.1097/00005650-198211000-00010.
5
Children's awareness of fatal illness.儿童对致命疾病的认知。
Am J Nurs. 1971 Jun;7(6):1168-72.
6
Long-term follow-up of parental adjustment following a child's death at home or hospital.
Cancer. 1989 Mar 1;63(5):988-94. doi: 10.1002/1097-0142(19890301)63:5<988::aid-cncr2820630534>3.0.co;2-y.
7
Care of the child dying of cancer: Part I.患癌濒死儿童的护理:第一部分。
CA Cancer J Clin. 1990 Nov-Dec;40(6):327-54. doi: 10.3322/canjclin.40.6.327.
8
Care of the child dying of cancer: Part II.患癌濒死儿童的护理:第二部分。
CA Cancer J Clin. 1991 Jan-Feb;41(1):52-60. doi: 10.3322/canjclin.41.1.52.
9
Terminal care costs in childhood cancer.儿童癌症的临终护理费用。
Pediatr Nurs. 1992 May-Jun;18(3):285-8.
10
Death anxiety in the outpatient leukemic child.门诊白血病患儿的死亡焦虑
Pediatrics. 1975 Dec;56(6):1035-7.

改善对濒死儿童的护理。

Improving care of dying children.

作者信息

Martinson I M

机构信息

Department of Family Health Care Nursing, University of California, San Francisco (UCSF), School of Nursing 94143-0606, USA.

出版信息

West J Med. 1995 Sep;163(3):258-62.

PMID:7571589
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1303050/
Abstract

Every year about 5,000 children aged 0 to 14 years need hospice care in the United States. Children seem to know that they are dying, although this is difficult for parents to accept. Clear, empathic understanding is needed. Communication with clarity and understanding is imperative with the changes in goals from cure to palliation to comfort. The ideal place for most dying children is at home, where symptoms can be managed as effectively as in a hospital.

摘要

在美国,每年约有5000名0至14岁的儿童需要临终关怀。孩子们似乎知道自己即将离世,尽管这让父母难以接受。我们需要清晰、感同身受的理解。随着目标从治愈转变为缓解痛苦再到给予安慰,清晰且理解性的沟通至关重要。对大多数濒死儿童来说,理想的地方是家中,在那里症状能得到与医院一样有效的处理。