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多发性硬化症患者对残疾的心理社会适应及其调查

Psychosocial adaptation to disability and its investigation among persons with multiple sclerosis.

作者信息

Antonak R F, Livneh H

机构信息

Department of Teaching Specialties, University of North Carolina at Charlotte, USA.

出版信息

Soc Sci Med. 1995 Apr;40(8):1099-108. doi: 10.1016/0277-9536(94)00167-r.

DOI:10.1016/0277-9536(94)00167-r
PMID:7597463
Abstract

This review begins with a general discussion of the concept of psychosocial adaptation to disability, reaction phases that the adaptation process is thought to comprise, instruments to measure adaptation and the basic research questions that need to be addressed to construct a theoretical model for the process. The research literature concerning psychosocial adaptation to disability among persons with multiple sclerosis is reviewed as an illustration. Research problems identified in this review are then listed, with suggestions for future research.

摘要

本综述首先对心理社会适应残疾的概念、适应过程被认为包含的反应阶段、测量适应的工具以及构建该过程理论模型所需解决的基本研究问题进行一般性讨论。作为示例,回顾了关于多发性硬化症患者心理社会适应残疾的研究文献。然后列出本综述中确定的研究问题,并给出未来研究的建议。

相似文献

1
Psychosocial adaptation to disability and its investigation among persons with multiple sclerosis.多发性硬化症患者对残疾的心理社会适应及其调查
Soc Sci Med. 1995 Apr;40(8):1099-108. doi: 10.1016/0277-9536(94)00167-r.
2
Social relationships, knowledge and adjustment to multiple sclerosis.社会关系、知识与对多发性硬化症的适应
J Neurol Neurosurg Psychiatry. 1984 Apr;47(4):372-6. doi: 10.1136/jnnp.47.4.372.
3
Effects of multiple sclerosis on physical and psychosocial functioning.多发性硬化症对身体和心理社会功能的影响。
Percept Mot Skills. 1994 Oct;79(2):753-4. doi: 10.2466/pms.1994.79.2.753.
4
[The significance of somatic and psychosocial factors for coping with illness by patients with multiple sclerosis].[躯体和心理社会因素对多发性硬化症患者应对疾病的意义]
Nervenarzt. 1989 Oct;60(10):641-6.
5
Physical and psychosocial functioning in multiple sclerosis: descriptions, correlations, and a tentative typology.
Br J Med Psychol. 1988 Jun;61(2):185-95. doi: 10.1111/j.2044-8341.1988.tb02778.x.
6
Multiple sclerosis: the impact of physical impairment and cognitive dysfunction on social and sparetime activities.
Psychother Psychosom. 1991;56(3):123-8. doi: 10.1159/000288544.
7
[Experiences with psychosocial management of patients with multiple sclerosis in a discussion group].
Psychiatr Neurol Med Psychol (Leipz). 1990 Jul;42(7):426-9.
8
Psychosocial factors in multiple sclerosis and the role of stress.多发性硬化症中的心理社会因素及压力的作用。
Ann N Y Acad Sci. 1984;436:435-42. doi: 10.1111/j.1749-6632.1984.tb14816.x.
9
[Psychosocial processing of disease exemplified by multiple sclerosis. Results of an empirical study of 27 males].[以多发性硬化症为例的疾病社会心理过程。对27名男性的实证研究结果]
Z Psychosom Med Psychoanal. 1985;31(1):61-80.
10
Self-esteem and disease adaptation among multiple sclerosis patients.多发性硬化症患者的自尊与疾病适应
J Soc Psychol. 1987 Dec;127(6):669-71.

引用本文的文献

1
Reliability and Validity of the Arabic Version of Attitudes Towards Intellectual Disability Questionnaire-Short Form (A-ATTID-S).阿拉伯语版智力残疾态度问卷简表(A-ATTID-S)的信度和效度
Psychol Res Behav Manag. 2022 May 20;15:1283-1293. doi: 10.2147/PRBM.S358181. eCollection 2022.
2
Experience of Identity Change in People Who Reported a Diagnosis of Multiple Sclerosis: A Qualitative Inquiry.报告患有多发性硬化症患者的身份认同变化经历:一项定性研究。
Int J MS Care. 2019 Sep-Oct;21(5):235-242. doi: 10.7224/1537-2073.2018-069.
3
Social Identity in People with Multiple Sclerosis: An Examination of Family Identity and Mood.
多发性硬化症患者的社会认同:家庭认同与情绪的考察
Int J MS Care. 2018 Mar-Apr;20(2):85-91. doi: 10.7224/1537-2073.2016-074.
4
A Patient-defined "Best Case" of Multiple Sclerosis Related to the Use of Complementary and Alternative Medicine.与使用补充和替代医学相关的患者定义的多发性硬化症“最佳案例”。
Glob Adv Health Med. 2012 Mar;1(1):32-4. doi: 10.7453/gahmj.2012.1.1.009.
5
Life issues in multiple sclerosis.多发性硬化中的生命议题。
Nat Rev Neurol. 2010 Nov;6(11):603-10. doi: 10.1038/nrneurol.2010.143. Epub 2010 Sep 21.
6
Understanding unexpected courses of multiple sclerosis among patients using complementary and alternative medicine: A travel from recipient to explorer.理解使用补充和替代医学的多发性硬化症患者中意外的病程:从接受者到探索者的旅程。
Int J Qual Stud Health Well-being. 2010 Jul 2;5(2). doi: 10.3402/qhw.v5i2.5032.
7
Protocol for the saMS trial (supportive adjustment for multiple sclerosis): a randomized controlled trial comparing cognitive behavioral therapy to supportive listening for adjustment to multiple sclerosis.多发性硬化症支持性调整试验(saMS 试验)方案:一项随机对照试验,比较认知行为疗法与支持性倾听对多发性硬化症适应情况的影响。
BMC Neurol. 2009 Aug 23;9:45. doi: 10.1186/1471-2377-9-45.
8
Psychosocial interventions in people with multiple sclerosis: a review.多发性硬化症患者的心理社会干预:综述
J Neurol. 2007 Jan;254(1):1-13. doi: 10.1007/s00415-006-0349-y. Epub 2007 Feb 14.
9
Neuropsychological aspects of multiple sclerosis.多发性硬化症的神经心理学方面
Neuropsychol Rev. 1998 Jun;8(2):43-77. doi: 10.1023/a:1025621700003.