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[以多发性硬化症为例的疾病社会心理过程。对27名男性的实证研究结果]

[Psychosocial processing of disease exemplified by multiple sclerosis. Results of an empirical study of 27 males].

作者信息

Seidler G H

出版信息

Z Psychosom Med Psychoanal. 1985;31(1):61-80.

PMID:3984538
Abstract

First, some details about the symptoms of Multiple Sclerosis and about theories concerning pathophysiology and etiology are described. After that, results of an enquiry into psycho-social coping mechanisms of 27 male patients living with Multiple Sclerosis are shown. In detail: To 85% of these patients micturation problems were a well-know experience. "Urging need to micturate" made it impossible for these patients to participate in public life and brought social isolation for them. A feeling of helplessness and impotence was caused by the symptom of unnoticed incontinence. No patient were divorced because of Multiple Sclerosis, but it seemed that some patients did not marry because of first symptoms of the disease. Changes in sexual functioning of these male patients depended upon the way of coping with sexuality generally by them, and was not merely a constant physiological defect. An investigation was also carried out about the length of time between first symptoms and the correct diagnosis, between the time of correct diagnosis and the time the patient was informed, as well as an investigation about the mourning process itself. For a better understanding of a patient having to cope with a chronic disease it is recommend to take into consideration also his premorbid life history.

摘要

首先,描述了多发性硬化症的一些症状细节以及有关病理生理学和病因学的理论。之后,展示了对27名患有多发性硬化症男性患者心理社会应对机制的调查结果。详细内容如下:这些患者中有85%经历过排尿问题。“尿急”使这些患者无法参与公共生活,并给他们带来了社会隔离。未被察觉的尿失禁症状导致了无助和无力感。没有患者因多发性硬化症而离婚,但似乎有些患者因该病的首发症状而未结婚。这些男性患者性功能的变化取决于他们总体上应对性问题的方式,而不仅仅是持续的生理缺陷。还对首发症状与正确诊断之间的时间长度、正确诊断时间与患者被告知时间之间的情况进行了调查,以及对哀悼过程本身进行了调查。为了更好地理解患者应对慢性病的情况,建议同时考虑其病前生活史。

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