McDonald C M
Department of Physical Medicine, University of California, Davis Medical Center, Sacramento, USA.
Neurosurg Clin N Am. 1995 Apr;6(2):393-412.
Tremendous advances have occurred over the past several decades in the comprehensive management of spinal dysraphism. Multiple specialists from varied surgical, medical, and allied health professions contribute to the rehabilitation management of children with spinal dysraphism. Rehabilitation goals and treatment strategies have been presented in the contexts of multiple functional outcome domains of critical importance to quality of life. In addition, the child with spinal dysraphism often has unique health care maintenance issues that require careful monitoring within a coordinated, interdisciplinary clinic setting. Prevention of neurologic, musculoskeletal, urologic, and medical complications is necessary for the child with spinal dysraphism to realize his or her maximum functional potential. A comprehensive rehabilitation program provides sufficient training, education, and long-term monitoring to enable the child not only to achieve self-sufficiency, but also to maintain an optimal level of function throughout life.
在过去几十年里,脊柱裂的综合管理取得了巨大进展。来自不同外科、医学和相关健康专业的多名专家参与了脊柱裂患儿的康复管理。康复目标和治疗策略是在对生活质量至关重要的多个功能结果领域的背景下提出的。此外,脊柱裂患儿往往有独特的医疗保健维护问题,需要在协调的跨学科诊所环境中进行仔细监测。对于脊柱裂患儿来说,预防神经、肌肉骨骼、泌尿和医疗并发症对于实现其最大功能潜力是必要的。一个全面的康复计划提供了足够的培训、教育和长期监测,使患儿不仅能够实现自给自足,而且能够在一生中保持最佳功能水平。