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临终关怀教育:视艾滋病患者为绝症患者——应对新的死亡流行趋势

Hospice education about people with AIDS as terminally ill patients: coping with a new epidemic of death.

作者信息

Dukes C S, Turpin B A, Atwood J R

出版信息

Am J Hosp Palliat Care. 1995 Jan-Feb;12(1):25-31. doi: 10.1177/104990919501200111.

Abstract

Hospice care for patients with AIDS often differs from care provided to patients with other terminal illnesses, such as cancer. We designed a seminar series to educate regional hospice staff about these differences and subsequently determined if the educational intervention was associated with improvements in their AIDS-related knowledge, attitudes, or behaviors toward patients with AIDS. Quantitative and qualitative data were collected from seminar participants (n = 63) and a similar comparison group (n = 18) at several time points. Seminar participants significantly improved their AIDS-related behaviors (p.05); and there was a trend toward knowledge improvement. Qualitative data shed light on the quantitative findings. Participants verbalized better understanding of the relatively aggressive care often given to terminally ill patients with AIDS when it enhanced quality of life.

摘要

为艾滋病患者提供的临终关怀通常不同于为其他绝症患者(如癌症患者)提供的护理。我们设计了一系列研讨会,以教育地区临终关怀工作人员了解这些差异,并随后确定这种教育干预是否与他们在艾滋病相关知识、态度或对艾滋病患者的行为方面的改善有关。在几个时间点从研讨会参与者(n = 63)和一个类似的对照组(n = 18)收集了定量和定性数据。研讨会参与者在与艾滋病相关的行为方面有显著改善(p.05);并且在知识改善方面有一个趋势。定性数据揭示了定量研究结果。参与者表示,当提高生活质量时,他们对通常给予晚期艾滋病患者的相对积极的护理有了更好的理解。

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