McMillan S C, Mahon M
College of Nursing, University of South Florida, Tampa.
Oncol Nurs Forum. 1994 Aug;21(7):1189-95.
PURPOSE/OBJECTIVES: To evaluate the effects of hospice services on the quality of life of primary caregivers and to evaluate the validity and reliability of a new tool.
Exploratory, descriptive.
A nonprofit hospice in Florida; clients are cared for primarily in the home.
68 adult primary caregivers of 68 patients with cancer enrolled in hospice care and 62 noncaregiving adults.
Subjects were recruited on admission to hospice and completed the Caregiver Quality of Life Index (CQLI) and the Hospice Quality of Life Index (HQLI) on admission and during week four of hospice care.
Caregivers' assessment of their own physical, social, financial, and emotional quality of life; patients' assessment of their physical, psychological, spiritual, social, and financial well-being.
No significant differences were found in caregiver quality-of-life scores from admission to week four, and no correlations existed between quality-of-life scores and age or education. A significant positive correlation was found between the caregivers' quality of life and their estimate of the patients' quality of life. Evidence exists that the CQLI is valid and reliable.
Caregivers of terminally ill people with cancer can maintain their quality of life during the first month of hospice care. The caregiver's perception of the patient's quality of life may affect the caregiver's quality of life.
When offering support to primary caregivers, the hospice team should include the four domains (physical, emotional, social, and financial) and should focus on the interrelatedness of the patient's and caregiver's quality of life.
目的/目标：评估临终关怀服务对主要照顾者生活质量的影响，并评估一种新工具的有效性和可靠性。
探索性、描述性研究。
佛罗里达州的一家非营利性临终关怀机构；患者主要在家中接受照料。
68名接受临终关怀的癌症患者的68名成年主要照顾者和62名非照顾者成年人。
在患者入院接受临终关怀时招募研究对象，并在入院时和临终关怀护理的第四周完成照顾者生活质量指数（CQLI）和临终关怀生活质量指数（HQLI）。
照顾者对自身身体、社会、经济和情感生活质量的评估；患者对自身身体、心理、精神、社会和经济状况的评估。
从入院到第四周，照顾者生活质量得分无显著差异，生活质量得分与年龄或教育程度之间无相关性。照顾者的生活质量与他们对患者生活质量的估计之间存在显著正相关。有证据表明CQLI有效且可靠。
患有癌症的晚期患者的照顾者在临终关怀护理的第一个月内可以维持其生活质量。照顾者对患者生活质量的认知可能会影响照顾者的生活质量。
在为主要照顾者提供支持时，临终关怀团队应涵盖四个领域（身体、情感、社会和经济），并应关注患者和照顾者生活质量的相互关联性。
