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囊性纤维化患者的居家护理

Home care in cystic fibrosis patients.

作者信息

van Aalderen W M, Mannes G P, Bosma E S, Roorda R J, Heymans H S

机构信息

Dept of Paediatric Pulmonology, Beatrix Children's Hospital, University Hospital Groningen, The Netherlands.

出版信息

Eur Respir J. 1995 Jan;8(1):172-5. doi: 10.1183/09031936.95.08010172.

Abstract

Intravenous antibiotics and enteral tube feeding at home for the treatment of pulmonary exacerbations and underweight condition in cystic fibrosis (CF) patients have become tools that are used in many cystic fibrosis centres. The experience with home care programmes from different countries is quite conclusive. If the necessary preparations are made, such as training of staff and patients, and financial support is arranged, home care is easy to put into practice. Optimal patient compliance is also necessary. Home care is as effective as hospital treatment for selected patients, and less expensive. Experience has increased during many treatment periods in different cystic fibrosis centres, and only a few adverse events have been recorded, indicating that home care is safe. However, the most important gain for cystic fibrosis patients is the reduction of hospital admission time, which means a definite improvement in the quality of life.

摘要

静脉注射抗生素和在家进行肠内管饲以治疗囊性纤维化(CF)患者的肺部加重和体重过轻状况,已成为许多囊性纤维化中心所采用的手段。来自不同国家的家庭护理项目经验颇具说服力。如果做好必要的准备工作,如对医护人员和患者进行培训,并安排好资金支持,家庭护理很容易付诸实践。患者的最佳依从性也是必要的。对于选定的患者,家庭护理与住院治疗效果相当,且费用更低。在不同的囊性纤维化中心,经过多个治疗周期,相关经验不断积累,仅记录到少数不良事件,这表明家庭护理是安全的。然而,对囊性纤维化患者最重要的益处是缩短了住院时间,这意味着生活质量有了切实改善。

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