Holmen T L, Vatten L
Statens Institutt for Folkehelse, Verdal, Innherred sykehus.
Tidsskr Nor Laegeforen. 1995 May 10;115(12):1513-5.
Good information to families who have children with bronchial asthma is essential for treatment and in helping the family to cope. The aim of this study was to find out what kind of information the parents meant they had received, their knowledge about asthma, and what sanitary measures had been taken at home. A questionnaire was sent to all children (N = 431) who, during a five year period, were entered into the records of the Department of Paediatrics, Innherred Hospital, Norway, with the diagnosis bronchial obstruction. A selected group of 55 children and their parents were also interviewed. The results showed that the parents were not satisfied with the information they had received about the illness and about effects and side effects of the medication. Furthermore, their knowledge about these matters was not satisfactory, judged both by themselves and by the interviewer. It was more difficult to quit smoking or to stop keeping animals than to do extra cleaning at home. Few parents were informed about their possibilities of receiving financial support and about patient organisations. Only in a few cases did the health service provide the school with information on the child's disease.
向有支气管哮喘患儿的家庭提供良好信息对于治疗以及帮助家庭应对至关重要。本研究的目的是了解家长表示他们收到了何种信息、他们对哮喘的了解程度以及在家中采取了哪些卫生措施。向所有在五年期间被录入挪威因内赫雷德医院儿科记录且诊断为支气管阻塞的儿童（N = 431）发送了问卷。还对一组选定的55名儿童及其家长进行了访谈。结果显示，家长对他们收到的有关疾病以及药物疗效和副作用的信息不满意。此外，无论是他们自己还是访谈者判断，他们在这些问题上的了解都不尽人意。戒烟或不再饲养动物比在家中进行额外清洁更困难。很少有家长被告知他们获得经济支持的可能性以及患者组织的情况。只有在少数情况下，卫生服务机构才向学校提供有关孩子病情的信息。
