Spencer J, Young M E, Rintala D, Bates S
School of Occupational Therapy, Texas Woman's University, Houston 77030.
Am J Occup Ther. 1995 Jan;49(1):53-62. doi: 10.5014/ajot.49.1.53.
Most previous research on rehabilitation of patients after spinal cord injuries has dealt with the attainment of outcomes valued by staff members or with the prediction of successful outcomes based on sociodemographic characteristics of patients. This study examined the rehabilitation process from the insider's perspective of an individual patient to determine his view of important adaptive problems and to examine how these problems were addressed.
Ethnographic methods were used for fine-grained documentation of the experiences of one 30-year-old man with spinal cord injury. Daily interview were conducted with this patient during his 116 days of inpatient rehabilitation. An interdisciplinary research team analyzed the data with the constant comparative method to identify a number of recurring themes.
Findings indicate that in addition to learning how to function in the local world of the rehabilitation hospital, the patient also learned a new identify as a person with a long-term disability.
A central theme was the patient's ongoing attempt to figure out how his future was related to his life before the injury and how he could use previous competencies in adapting to disability. Staff members seemed so intent on teaching the patient new skills that they often discounted the significance of his past experience and failed to engage in helping the patient connect his future life story to his past.
以往大多数关于脊髓损伤患者康复的研究都聚焦于实现工作人员所重视的结果,或者基于患者的社会人口学特征预测成功的结果。本研究从个体患者的内部视角审视康复过程,以确定他对重要适应性问题的看法,并考察这些问题是如何得到解决的。
采用人种志方法对一名30岁脊髓损伤男性患者的经历进行细致记录。在其116天的住院康复期间,每天都对该患者进行访谈。一个跨学科研究团队运用持续比较法分析数据,以确定一些反复出现的主题。
研究结果表明,除了学习如何在康复医院的当地环境中发挥功能外,患者还获得了作为一名长期残疾者的新身份认同。
一个核心主题是患者持续不断地试图弄清楚他的未来与受伤前的生活有何关联,以及他如何利用以前的能力来适应残疾。工作人员似乎一心只想教患者新技能,以至于他们常常忽视患者过去经历的重要性,未能帮助患者将其未来的生活故事与过去联系起来。