Birenbaum L K
Mary Margaret Walther Program for Cancer Care Research, Indiana University School of Nursing, Indianapolis 46202.
J Pediatr Oncol Nurs. 1995 Jan;12(1):25-38. doi: 10.1177/104345429501200107.
This article reviews and critiques pediatric oncology family nursing research and suggests advancing the research basis of pediatric oncology family nursing practice. The article is organized around the conceptual issues that challenge family nurse researchers, the methods used in reviewing the literature, instrumentation that reflects conceptual issues, findings, and suggestions. Methodological issues abound in this literature and some shared findings across studies do exist: parenting is a concern of all family members; family communication problems have been identified from several perspectives; and increased stress at some points in treatment is reported by all members of the family. Coping is an area of limited agreement and adjustment is poorly articulated in this literature. Longitudinal studies, improved instrumentation, use of triangulation, and publication of more complicated data sets that include family measurement are recommended to advance the scientific basis of pediatric oncology family nursing.
本文回顾并评论了儿科肿瘤学家庭护理研究，并建议推进儿科肿瘤学家庭护理实践的研究基础。本文围绕挑战家庭护士研究者的概念性问题、文献综述所使用的方法、反映概念性问题的工具、研究结果及建议展开。该文献中存在大量方法学问题，同时也确实存在一些跨研究的共同发现：养育是所有家庭成员共同关心的问题；已从多个角度识别出家庭沟通问题；据报道，治疗过程中某些阶段所有家庭成员的压力都有所增加。应对是一个共识有限的领域，而在该文献中对适应的阐述也很薄弱。建议开展纵向研究、改进测量工具、采用三角测量法，并发表包含家庭测量的更复杂数据集，以推进儿科肿瘤学家庭护理的科学基础。
