Mold J W, Looney S W, Viviani N J, Quiggins P A
Department of Family Medicine, University of Oklahoma Health Sciences Center, Oklahoma City 73104.
J Fam Pract. 1994 Nov;39(5):461-7.
Those who must make health care decisions on behalf of persons who lack decision-making capacity often have too little information. The purpose of this study was to determine whether and to what degree sociodemographic factors, social support, religious involvement, and functional status served as predictors of the health-related values and preferences of geriatric patients.
A retrospective chart review involving 178 cognitively intact patients enrolled at a geriatric clinic at a university medical center was conducted. Patient variables included age, race, sex, marital status, years of education, participation in formal religious activities, self-reported functional status, and adequacy of social and family support. These were compared with responses to a modified version of the Values History questionnaire, an established method of evaluating patient values that includes advance directives.
Patients were likely to value quality (82%) over quantity of life (18%) and the ability to think clearly (64%) over 13 other specific health-related values. They were likely (93%) to want to be taken to a hospital emergency department on losing consciousness or becoming confused. Seventy-eight percent expressed a desire to be resuscitated using cardiopulmonary resuscitation (CPR), and 76% expressed a preference for use of a respirator, if necessary. Most (85%) considered a permanent vegetative state to be worse than death. High functional status predicted a preference for quality of life over length of life and the perception of a persistent vegetative state as worse than death (positive predictive value = 89%). Persons with better social and family support were more likely to accept treatment with CPR or a respirator and less likely to consider a permanent vegetative state to be worse than death. No single patient factor was strong enough to increase the probability of a particular value or preference by more than 17% above baseline.
Sociodemographic and functional status variables are relatively weak predictors of personal values and directives. This reinforces the importance of routinely eliciting patient values and preferences and of updating the information, particularly following changes in functional status or family support. Baseline information regarding the health-related values and preferences of this primary care geriatric clinic population may provide valuable information about the values and preferences of decisionally impaired older patients.
那些必须代表缺乏决策能力的人做出医疗保健决策的人往往信息不足。本研究的目的是确定社会人口学因素、社会支持、宗教参与和功能状态是否以及在何种程度上可作为老年患者健康相关价值观和偏好的预测因素。
对一所大学医学中心老年诊所登记的178名认知功能正常的患者进行回顾性病历审查。患者变量包括年龄、种族、性别、婚姻状况、受教育年限、参加正式宗教活动情况、自我报告的功能状态以及社会和家庭支持的充足程度。将这些变量与对价值观历史问卷修改版的回答进行比较,价值观历史问卷是一种评估患者价值观的既定方法,包括预先指示。
患者更看重生活质量(82%)而非生命数量(18%),更看重思维清晰的能力(64%)而非其他13项与健康相关的特定价值观。他们很可能(93%)希望在失去意识或变得困惑时被送往医院急诊科。78%的人表示希望在必要时通过心肺复苏(CPR)进行复苏,76%的人表示更倾向于使用呼吸机。大多数(85%)人认为永久性植物状态比死亡更糟糕。高功能状态预示着更倾向于生活质量而非生命长度,以及认为持续性植物状态比死亡更糟糕(阳性预测值 = 89%)。社会和家庭支持较好的人更有可能接受CPR或呼吸机治疗,不太可能认为永久性植物状态比死亡更糟糕。没有单一的患者因素强大到足以使特定价值观或偏好的概率比基线增加超过17%。
社会人口学和功能状态变量对个人价值观和指示的预测作用相对较弱。这强化了常规获取患者价值观和偏好并更新信息的重要性,特别是在功能状态或家庭支持发生变化之后。关于该初级保健老年诊所人群健康相关价值观和偏好的基线信息可能为决策受损老年患者的价值观和偏好提供有价值的信息。