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类风湿关节炎的健康状况评估。II. 改良版简短疾病影响量表的评估

Health status assessment in rheumatoid arthritis. II. Evaluation of a modified Shorter Sickness Impact Profile.

作者信息

Sullivan M, Ahlmén M, Bjelle A, Karlsson J

机构信息

Department of Internal Medicine/Health Care Research Unit, Gothenburg University, Sweden.

出版信息

J Rheumatol. 1993 Sep;20(9):1500-7.

PMID:8164205
Abstract

OBJECTIVE

To develop a shortened form of the Sickness Impact Profile (SIP) for routine practice.

METHODS

We used data from a study of health status in 99 women with rheumatoid arthritis (RA). A stepwise analysis model used physical discomfort (global rating), self-assessed pain (Body Symptom Scale), mental well-being (Mood Adjective Check List) and joint function (Keitel Index) to define important aspects of health.

RESULTS

Short forms of the SIP for discrimination (53 items), evaluation (25 items) and prediction (28 items) compared well in validity to the original 136-item SIP. The discriminative short form showed excellent reliability (internal consistency), matching the level of the generic SIP. The evaluative and predictive short forms had acceptable but lower internal consistency than the original Profile.

CONCLUSION

We suggest a 64-item core health status questionnaire (SIP-RA) to be included and further tested in the arsenal of routine measurements in outpatients with RA. The questionnaire should include physical (Body care and movement, Mobility), psychosocial (Emotional behavior, Social interaction, Alertness behavior, Communication) and free-standing (Sleep and rest, Home management, Recreation and past-times, Eating) SIP categories, and it will improve the description of patients with RA.

摘要

目的

开发一种用于常规实践的疾病影响量表(SIP)简化版。

方法

我们使用了一项针对99名类风湿性关节炎(RA)女性健康状况研究的数据。一个逐步分析模型利用身体不适(总体评分)、自我评估疼痛(身体症状量表)、心理健康(情绪形容词检查表)和关节功能(凯特尔指数)来确定健康的重要方面。

结果

SIP的鉴别版(53项)、评估版(25项)和预测版(28项)简化版在效度方面与原始的136项SIP相比表现良好。鉴别性简化版显示出出色的信度(内部一致性),与通用SIP的水平相当。评估性和预测性简化版具有可接受但低于原始量表的内部一致性。

结论

我们建议将一份64项的核心健康状况问卷(SIP-RA)纳入类风湿性关节炎门诊患者常规测量工具库并进行进一步测试。该问卷应包括身体方面(身体护理与活动、活动能力)、心理社会方面(情绪行为、社会交往、警觉行为、沟通)以及独立方面(睡眠与休息、家庭管理、娱乐与休闲、饮食)的SIP类别,并且它将改善对类风湿性关节炎患者的描述。

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Acta Orthop. 2012 Apr;83(2):179-84. doi: 10.3109/17453674.2011.645193. Epub 2011 Dec 29.
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Measurement properties of physical function scales validated for use in patients with rheumatoid arthritis: a systematic review of the literature.用于类风湿关节炎患者的身体功能量表的测量特性的验证:文献的系统评价。
Health Qual Life Outcomes. 2011 Nov 7;9:99. doi: 10.1186/1477-7525-9-99.
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A comparative review of generic quality-of-life instruments.
通用生活质量量表的比较综述
Pharmacoeconomics. 2000 Jan;17(1):13-35. doi: 10.2165/00019053-200017010-00002.
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Quality of life bibliography and indexes: 1993 update.生活质量参考书目与索引:1993年更新版
Qual Life Res. 1995 Feb;4(1):53-74. doi: 10.1007/BF00434384.