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用于评估成人生长激素缺乏症患者生活质量的疾病特异性工具开发的初步报告。

Preliminary report on the development of a disease-specific instrument for assessing quality of life of adults with growth hormone deficiency.

作者信息

Hunt S M, McKenna S P, Doward L C

机构信息

Galen Research and Consultancy, Manchester, UK.

出版信息

Acta Endocrinol (Copenh). 1993 Jun;128 Suppl 2:37-40.

PMID:8342391
Abstract

It is notable that many of the feelings described by the people in the sample are similar to those experienced at times by people who do not suffer from GHD, that is, lapses of memory, feeling drained of energy, loss of temper, loss of motivation, difficulty in concentrating, forgetfulness and having a tendency to gain weight. Adults with GHD, however, appear to suffer these problems more frequently and to a more extreme degree than other people. It is clear that the range of problems that afflict people with GHD is great, and that the repercussions affect virtually all aspects of their lives. The results from these interviews will form the basis of a measure designed specifically to assess the quality of life of patients with GHD, and to determine the changes in quality of life after treatment with GH.

摘要

值得注意的是,样本中的许多人所描述的感受与非生长激素缺乏症患者有时经历的感受相似,即记忆力减退、精力耗尽、脾气暴躁、动力丧失、注意力难以集中、健忘以及有体重增加的倾向。然而,患有生长激素缺乏症的成年人似乎比其他人更频繁、更极端地遭受这些问题。显然,困扰生长激素缺乏症患者的问题范围很广,其影响几乎涉及他们生活的方方面面。这些访谈的结果将构成一项专门设计的测量方法的基础,该方法用于评估生长激素缺乏症患者的生活质量,并确定生长激素治疗后生活质量的变化。

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