Pannbacker M, Scheuerle J
Louisiana State University Medical Center, School of Allied Health Professions, Department of Communication Disorders, Shreveport 71130-3932.
Cleft Palate Craniofac J. 1993 Jan;30(1):87-9. doi: 10.1597/1545-1569_1993_030_0087_patfii_2.3.co_2.
Families exert a powerful influence upon their members and can be a significant resource in cleft palate treatment. The purposes of this study were to gather information about (1) the characteristics and attitudes of families whose children are treated for cleft palate; (2) the extent to which parents participate in decisions about treatment; and (3) parents' ideas about their participation. A 32-item survey questionnaire was distributed to 75 parents in Florida, Louisiana, Minnesota, and Pennsylvania. Forty-two survey forms (56%) were completed and returned for analysis. The majority of parents (57%) were satisfied with their present involvement in team treatment services; however, 36% wished for more involvement, and 7% wished for less involvement.
家庭对其成员有着强大的影响力，并且在腭裂治疗中可以成为重要的资源。本研究的目的是收集有关以下方面的信息：（1）孩子接受腭裂治疗的家庭的特征和态度；（2）父母参与治疗决策的程度；（3）父母对自身参与的看法。一份包含32个条目的调查问卷被分发给佛罗里达州、路易斯安那州、明尼苏达州和宾夕法尼亚州的75位家长。42份调查问卷（56%）被填写并返回用于分析。大多数家长（57%）对他们目前参与团队治疗服务的情况感到满意；然而，36%的家长希望更多地参与，7%的家长希望减少参与。
