McLaughlin A M, Carey J L
Bryn Mawr Rehabilitation Hospital, Malvern, PA 19355.
Brain Inj. 1993 Jan-Feb;7(1):45-51. doi: 10.3109/02699059309008155.
Families of individuals who have survived brain injuries experience significant distress, and may resist accepting their relative's neurobehavioural deficits. Staff who work with brain-injured patients and their relatives are charged with the seemingly paradoxical task of helping families support rehabilitative efforts and be goal-oriented, while simultaneously communicating often negative realities about prognosis. In the midst of what may be an intermittently conflict-laden relationship, families and staff must become synergistically involved in a therapeutic partnership. This paper defines aspects of this 'adversarial alliance' which is often established between families and staff. The relationship between patient discharge outcome and perceived family stress and satisfaction with the rehabilitation programme was reviewed. Data analyses yielded the following conclusions: families evaluated retrospectively to have been 'highly stressed' were also perceived to experience more conflict with the rehabilitation team; family stress was related to poorer adjustment to the patient's disability (at admission); greater family/team conflict correlated with lower cognitive and physical functioning at admission, longer length of stay, younger patient age, and lower programme satisfaction. Implications for programme development and treatment guidelines are discussed.
脑损伤幸存者的家属会经历巨大的痛苦,并且可能抗拒接受其亲属的神经行为缺陷。与脑损伤患者及其家属打交道的工作人员肩负着一项看似矛盾的任务:一方面要帮助家属支持康复工作并以目标为导向,另一方面却要同时传达有关预后的往往较为负面的现实情况。在这种可能时而充满冲突的关系中,家属和工作人员必须协同参与到一种治疗性的合作关系中。本文界定了这种常常在家属和工作人员之间建立起来的“对抗联盟”的各个方面。回顾了患者出院结果与所感知到的家庭压力以及对康复项目满意度之间的关系。数据分析得出了以下结论:经回顾评估为“压力极大”的家庭也被认为与康复团队存在更多冲突;家庭压力与对患者残疾状况(入院时)的适应较差有关;更大的家庭/团队冲突与入院时较低的认知和身体功能、更长的住院时间、患者年龄较小以及对项目的较低满意度相关。文中还讨论了对项目开发和治疗指南的启示。