Martinson I M, Liang Y H
Department of Family Health Care Nursing, University of California, San Francisco 94143-0606.
J Pediatr Oncol Nurs. 1993 Jan;10(1):13-8. doi: 10.1177/104345429301000104.
As part of a larger study, a descriptive study of the impact of childhood cancer on 50 Chinese families was conducted in Guangzhou (Canton) in the Guangdong Province of the Peoples' Republic of China. The parents of children whose cancer was newly diagnosed (n = 25) or undergoing treatment (n = 25) were interviewed in Chinese and their responses were then translated to English. The children ranged in age from 3 to 16 years and had a variety of cancer diagnoses. Parental occupations and incomes varied. The majority (42%) of the families only had the child with cancer. The duration of symptoms before the diagnosis ranged from 1 week to greater than 2 years. Thirty-five parents (70%) believed that their child knew very little or nothing about their disease. The children learned of their diagnosis in a variety of ways. The parents varied in their degree of openness regarding the child's diagnosis with relatives, friends, and colleagues. Some families had previous experience with a serious illness or death, but all identified cancer as the most frightening disease. Forty-one percent of the families felt they had not adjusted yet to the diagnosis. Few acknowledged the impact on siblings. Families also described their outlook on life and their fears of death. Seventy-six percent of the families were paying the total cost of their child's care themselves, and 14% of the total number of families reported major financial problems.
作为一项更大规模研究的一部分，在中国广东省广州市对50个中国家庭进行了一项关于儿童癌症影响的描述性研究。对癌症新确诊（n = 25）或正在接受治疗（n = 25）儿童的父母进行了中文访谈，然后将他们的回答翻译成英文。这些儿童年龄在3至16岁之间，患有多种癌症。父母的职业和收入各不相同。大多数（42%）家庭只有患癌症的孩子。诊断前症状持续时间从1周到超过2年不等。35位家长（70%）认为他们的孩子对自己的病情了解很少或一无所知。孩子们通过多种方式得知自己的诊断结果。父母在向亲戚、朋友和同事公开孩子诊断情况的程度上各不相同。一些家庭以前有过严重疾病或死亡的经历，但都认为癌症是最可怕的疾病。41%的家庭觉得他们还没有适应孩子的诊断结果。很少有人承认这对兄弟姐妹有影响。家庭还描述了他们的人生观和对死亡的恐惧。76%的家庭自己承担孩子的全部护理费用，14%的家庭报告有重大经济问题。
