Hanestad B R
Department of Public Health and Primary Health Care, Medical Faculty, University of Bergen, Norway.
Diabetes Res Clin Pract. 1993 Feb;19(2):139-49. doi: 10.1016/0168-8227(93)90107-g.
The aims of the present study were to describe how people with type 1 diabetes experienced their quality of life and to examine the effect of the different background characteristics of sex, age, social status, education, disease duration. HbA1 levels, regimen and the frequency of complications on self-reported quality of life. A self-administered questionnaire consisting of 28 items measuring satisfaction within the physical, psychological, social and activity/behavioural life-domain and 11 well-being scales was completed by 247 patients with type 1 diabetes who consecutively attended a Norwegian diabetes clinic. Main findings from the study showed that over 80% of patients reported their capacity for self-care, general well-being, satisfaction with life and social contacts to be quite good or better. Forty five percent of patients perceived their life situation to be negatively effected due to diabetes. Multivariate analysis showed that living alone had a negative effect on satisfaction in the physical, social and psychological life-domain. Higher levels of HbA1 were associated with reported lower satisfaction within the physical and activity/behavioural life-domain. The effect of the different background characteristics on reported well-being showed no consistent pattern. These findings indicate that the majority of patients in this study experienced a satisfactory quality of life despite living with a chronic illness such as diabetes.
本研究的目的是描述1型糖尿病患者的生活质量体验,并考察性别、年龄、社会地位、教育程度、病程、糖化血红蛋白(HbA1)水平、治疗方案及并发症发生频率等不同背景特征对自我报告的生活质量的影响。一份由28个项目组成的自填式问卷对247名1型糖尿病患者进行了调查,这些患者连续前往一家挪威糖尿病诊所就诊,问卷测量了身体、心理、社会和活动/行为生活领域的满意度以及11个幸福感量表。该研究的主要发现表明,超过80%的患者报告其自我护理能力、总体幸福感、生活满意度和社会交往情况相当好或更好。45%的患者认为糖尿病对其生活状况产生了负面影响。多变量分析表明,独居对身体、社会和心理生活领域的满意度有负面影响。较高的HbA1水平与身体和活动/行为生活领域较低的满意度相关。不同背景特征对报告的幸福感的影响没有呈现出一致的模式。这些发现表明,尽管患有糖尿病等慢性病,但本研究中的大多数患者仍体验到了令人满意的生活质量。