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精神科医生对肿瘤学领域生活质量与护理质量的看法:概念、症状管理、沟通问题

The psychiatrist's perspective on quality of life and quality of care in oncology: concepts, symptom management, communication issues.

作者信息

Razavi D, Delvaux N

机构信息

Service de Médecine Interne et Laboratoire d'Investigation Clinique H.J. Tagnon (Unité de Psycho-Oncologie et de Réhabilitation), Institut Jules Border, Bruxelles, Belgium.

出版信息

Eur J Cancer. 1995;31A Suppl 6:S25-9. doi: 10.1016/0959-8049(95)00490-a.

Abstract

The important prevalence of psychosocial problems and psychiatric disturbances that have been reported in oncology, underlines the need for comprehensive psychosocial support for cancer patients and their families. Psychosocial support is designed to preserve, restore or enhance quality of life. Quality of life refers not only to psychosocial distress and adjustment-related problems but also to the management of cancer symptoms and treatment side-effects. Psychosocial interventions designed for this purpose should be divided into five categories: prevention, early detection, restoration, support and palliation. Firstly, preventive interventions are designed to avoid the development of predictable morbidity secondary to treatment and/or disease. Secondly, early detection of patients' needs or problems refers to the assumption that early interventions' could have therapeutic results superior to those of delayed support, both for quality of life and survival. Thirdly, restorative interventions refer to actions used when a cure is likely, the aim being the control or elimination of residual cancer disability. Fourthly, supportive rehabilitation is planned to lessen disability related to chronic disease, characterised by cancer illness remission and progression, and to active treatment. Fifthly, palliation is required when curative treatments are likely to no longer be effective, and when maintaining or improving comfort becomes the main goal. Psychological interventions are often multidisciplinary, with a variety of content. The type of psychological intervention ranges from information and education to more sophisticated support programmes including directive (behavioural or cognitive) therapies, or non-directive (dynamic or supportive) therapies. Social interventions usually include financial, household, equipment, and transport assistance depending on individual and family needs and resources. These interventions may be combined with the prescription of pharmacological (psychotropic, analgesic), physical, speech or occupational therapies, especially in rehabilitation programmes. Health care services devoted to delivery of these interventions are hospital, hospice or home-based and organised very differently depending on already available community resources and local practice.

摘要

肿瘤学领域报告的心理社会问题和精神障碍的重要普遍性,凸显了为癌症患者及其家属提供全面心理社会支持的必要性。心理社会支持旨在维持、恢复或提高生活质量。生活质量不仅指心理社会困扰和与适应相关的问题,还包括癌症症状管理和治疗副作用。为此目的设计的心理社会干预应分为五类:预防、早期发现、恢复、支持和姑息治疗。首先,预防性干预旨在避免因治疗和/或疾病导致的可预测发病率的发展。其次,早期发现患者的需求或问题是指这样一种假设,即早期干预对于生活质量和生存而言,其治疗效果可能优于延迟支持。第三,恢复性干预是指在有可能治愈时采取的行动,目的是控制或消除残留的癌症残疾。第四,支持性康复计划旨在减轻与慢性病相关的残疾,其特征为癌症病情缓解和进展以及积极治疗。第五,当治愈性治疗可能不再有效,且维持或改善舒适度成为主要目标时,需要进行姑息治疗。心理干预通常是多学科的,内容多样。心理干预的类型从信息和教育到更复杂的支持计划不等,包括指导性(行为或认知)疗法或非指导性(动态或支持性)疗法。社会干预通常包括根据个人和家庭需求及资源提供的财务、家庭、设备和交通援助。这些干预可能与药物(精神药物、镇痛药)、物理、言语或职业疗法的处方相结合,尤其是在康复计划中。致力于提供这些干预的医疗服务机构有医院、临终关怀机构或居家服务机构,其组织方式因现有的社区资源和当地实践而有很大差异。

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