Horn J D, Feldman H M, Ploof D L
Department of Clinical Social Work, Children's Hospital of Pittsburgh, PA 15213, USA.
Soc Work Health Care. 1995;21(1):107-27. doi: 10.1300/J010v21n01_09.
The two goals of this study were (1) to describe the stressors and coping strategies of families whose children with chronic illness require lengthy hospitalizations and (2) to compare family reports of stress and coping strategies to professionals perceptions of the same. A non-randomized sample of 13 families (13 mothers and 5 fathers) whose child with chronic illness was hospitalized for a minimum of 30 days and 11 professionals who worked with such children were interviewed in a semi-structured survey using open-ended questions. Key phrases from family interviews were organized into categories of family-reported stressors and coping strategies. Key phrases from professional interviews were categorized into family stressors and descriptions of challenging families. Families and professionals reported that personal emotions and communication problems were the most predominant stressors.
(1)描述其患有慢性病的子女需要长期住院治疗的家庭所面临的压力源及应对策略;(2)比较家庭报告的压力及应对策略与专业人员对此的看法。采用开放式问题进行半结构化调查,对13个家庭(13位母亲和5位父亲)进行了访谈,这些家庭中患有慢性病的子女至少住院30天,同时还访谈了11位与这类患儿打交道的专业人员。家庭访谈中的关键短语被归纳为家庭报告的压力源和应对策略类别。专业人员访谈中的关键短语被归类为家庭压力源和对具有挑战性家庭的描述。家庭和专业人员均报告称,个人情绪和沟通问题是最主要的压力源。