Buchanan J, Borland R, Cosolo W, Millership R, Haines I, Zimet A, Zalcberg J
Department of Medical Oncology and Palliative Care, Austin and Repatriation Medical Centre, Heidelberg, West Vic, Australia.
Support Care Cancer. 1996 Mar;4(2):110-7. doi: 10.1007/BF01845760.
The results of a questionnaire answered by 205 medical patients are reported (100 patients with cancer and 105 with other medical conditions). The questionnaire examined beliefs and preferences regarding various aspects of cancer, including expectations of medical management and treatment. The issues examined relate to beliefs and preferences about information giving, trust of doctors' control of decision making, expectations of help, expectations of treatment, the treatment of cancer pain including morphine use, and issues of terminal care. Some patients appear to hold the inconsistent beliefs that doctors should tell them all they want to know, but that doctors do not know a lot of what they would like to be told. They were also ambivalent about who should make decisions, patient or doctor, suggesting a preference for collaborative consensus decision making. It may be important to inform patients more clearly about what doctors can and cannot reasonably be expected to know and do. Some incorrect beliefs about management were related to fear about having cancer. The results suggest the need for better communication between patients and their professional carers and the need for accessible health information about cancer management to be available to the general public.
报告了205名医学患者回答问卷的结果（100名癌症患者和105名患有其他疾病的患者）。该问卷调查了患者对癌症各个方面的信念和偏好，包括对医疗管理和治疗的期望。调查的问题涉及关于信息提供的信念和偏好、对医生决策控制的信任、对帮助的期望、对治疗的期望、癌症疼痛的治疗（包括吗啡的使用）以及临终关怀问题。一些患者似乎持有相互矛盾的信念，即医生应该告诉他们所有他们想知道的事情，但医生并不了解很多他们希望被告知的事情。他们对于应该由患者还是医生做出决策也存在矛盾态度，这表明他们倾向于通过协作达成共识来做出决策。更清楚地告知患者医生能够合理知晓和做到的事情以及无法做到的事情可能很重要。一些关于治疗的错误信念与对患癌症的恐惧有关。结果表明患者与其专业护理人员之间需要更好的沟通，并且需要向公众提供关于癌症治疗的易于获取的健康信息。
