Taanila A, Kokkonen J, Järvelin M R
Department of Public Health Science and General Practice, Oulu, Finland.
Dev Med Child Neurol. 1996 Jul;38(7):567-77. doi: 10.1111/j.1469-8749.1996.tb12121.x.
To investigate the long-term effects of a child's chronic illness or severe physical or intellectual disability on parents and their marital relationship, the parents of 89 children, aged 14-17, years were interviewed. The parents returned a questionnaire and a social worker interviewed them. One-fifth of the respondents had experienced the child's disability as contributing positively to the marital relationship, 25% reported impairment in some areas of the marital relationship, while only 7% felt that they had drawn apart from each other. A higher level of occupational education, insecurity at onset, heavy daily demands for care of the child, unequal distribution of tasks between the spouses and a lack of time for leisure activities were found to be risk factors for impaired marital satisfaction. Adequate information, a realistic notion of the illness or disability and practical advice for everyday life seemed to be the protective factors for the marital relationship.
为了调查儿童慢性病或严重身体或智力残疾对父母及其婚姻关系的长期影响，研究人员对89名14至17岁儿童的父母进行了访谈。父母们返回了一份问卷，一名社会工作者对他们进行了访谈。五分之一的受访者认为孩子的残疾对婚姻关系有积极影响，25%的人报告婚姻关系的某些方面受到损害，而只有7%的人觉得他们彼此疏远了。研究发现，较高的职业教育水平、发病时的不安全感、照顾孩子的繁重日常需求、配偶之间任务分配不均以及缺乏休闲活动时间是婚姻满意度受损的风险因素。充足的信息、对疾病或残疾的现实认识以及日常生活的实用建议似乎是婚姻关系的保护因素。
