Nielsen G L, Sørensen H T, Pedersen A B, Sabroe S
Department of Internal Medicine M, Aalborg Hospital, Denmark.
J Med Syst. 1996 Feb;20(1):1-10. doi: 10.1007/BF02260869.
To evaluate the data quality in the Danish National Registry of Patients (DNRP) and the Prescription Registry in the country of Northern Jutland (487,000 inhabitants) concerning insulin dependent diabetes mellitus (IDDM) and insulin treated diabetes mellitus, a comparison between data in the two registries was made. From the Regional Hospital Registry in the County of Northern Jutland, containing discharge diagnoses from all admissions to hospitals in the county, we identified all patients with the IDDM diagnosis between 1987 and 1993. From the Regional Prescription Registry all insulin prescriptions taken up at pharmacies in the county in 1993 were identified. All persons were identified by their individual identification number (CPR-number), and a record linkage between the two data sources was made. The predictive value of an IDDM-registration in the DNRP was 96% and the corresponding completeness 91%. In the Prescription Registry the completeness was 96%. Both registries seem to be valuable study bases for epidemiological research in diabetes mellitus.
为评估丹麦国家患者注册中心(DNRP)以及日德兰半岛北部地区(48.7万居民)的处方注册中心关于胰岛素依赖型糖尿病(IDDM)和胰岛素治疗糖尿病的数据质量,对两个注册中心的数据进行了比较。从日德兰半岛北部地区医院注册中心(包含该地区所有医院入院患者的出院诊断信息),我们确定了1987年至1993年间所有诊断为IDDM的患者。从地区处方注册中心确定了1993年该地区药店所有领取的胰岛素处方。所有人员通过其个人身份识别号码(CPR号码)进行识别,并对两个数据源进行了记录链接。DNRP中IDDM注册的预测值为96%,相应的完整性为91%。在处方注册中心,完整性为96%。两个注册中心似乎都是糖尿病流行病学研究的宝贵研究基础。