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定义面瘫患者的功能受限、残疾及社会限制:初始试点问卷

Defining functional limitation, disability, and societal limitations in patients with facial paresis: initial pilot questionnaire.

作者信息

Neely J G, Neufeld P S

机构信息

Department of Otolaryngology-Head and Neck Surgery, Washington University School of Medicine, St. Louis, Missouri 63110, USA.

出版信息

Am J Otol. 1996 Mar;17(2):340-2.

PMID:8723973
Abstract

Experiences with patients with facial paralysis over the last 25 years and recent efforts to develop objective measures of paresis and synkinesis led us to three hypotheses: (a) dysfunction in certain regions of the face is more disturbing than that in others, (b) there are major psychosocial impacts of facial paralysis, and (c) the impact of facial paralysis is underestimated. An initial questionnaire of 10 open-ended items was submitted to 11 subjects stabilized after acoustic tumor resection. Responses were tabulated qualitatively, and frequency counts were made of responses. These results show that the region of the face that is most disturbing is the mouth; however, early in the time course of paralysis, the eye is most disturbing. Synkinesis above the eye is ultimately more disturbing than paresis in that region, and it may worsen. Major psychosocial impacts of paralysis appear common and underestimated. These pilot data qualitatively support the hypotheses.

摘要

过去25年里对面部瘫痪患者的治疗经验以及近期为开发客观评估轻瘫和联带运动的方法所做的努力,使我们得出了三个假设:(a)面部某些区域的功能障碍比其他区域的更令人困扰;(b)面部瘫痪会产生重大的心理社会影响;(c)面部瘫痪的影响被低估了。我们向11名接受听神经瘤切除术后病情稳定的受试者发放了一份包含10个开放式问题的初始问卷。对回答进行了定性列表,并统计了回答的频率。这些结果表明,最令人困扰的面部区域是嘴部;然而,在瘫痪病程的早期,眼睛最令人困扰。眼部以上的联带运动最终比该区域的轻瘫更令人困扰,而且可能会恶化。瘫痪的重大心理社会影响似乎很常见且被低估了。这些初步数据从定性角度支持了这些假设。

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