McMillan S C
Cancer Pract. 1996 Jul-Aug;4(4):191-8.
The purpose of this study was to evaluate the quality of life of a group of adults who were serving as primary caregivers for 118 hospice patients with cancer who were receiving hospice home care in west central Florida.
The Caregiver Quality of Life Index, used in the study, includes items related to physical, emotional, social, and financial well-being. The Caregiver Quality of Life Index was administered within 48 hours of admission to hospice and after 3 weeks of hospice care (during week 4).
Quality of life scores remained stable from admission to week 4. Item scores were highest for social well-being (74.7 and 69.7) and lowest for physical well-being (60.6 and 63.7). No significant differences were found in item scores from admission to week 4.
Quality of life of primary caregivers is negatively affected by caregiving, but the support provided by hospice care may help to ameliorate these effects. Health providers who are alert to caregiver needs and knowledgeable about the work of the multidisciplinary hospice team will be more likely to refer patients and caregivers to appropriate hospice care.
本研究旨在评估一群成年主要照料者的生活质量，这些照料者负责照顾佛罗里达州中西部地区118名接受临终关怀居家护理的癌症临终患者。
本研究中使用的照料者生活质量指数包括与身体、情感、社会和财务福祉相关的项目。照料者生活质量指数在患者入住临终关怀机构后48小时内以及临终关怀护理3周后（第4周）进行评估。
从入院到第4周，生活质量得分保持稳定。社会福祉项目得分最高（分别为74.7和69.7），身体福祉项目得分最低（分别为60.6和63.7）。从入院到第4周，项目得分未发现显著差异。
主要照料者的生活质量受到照料工作的负面影响，但临终关怀护理提供的支持可能有助于减轻这些影响。对照料者需求敏感且了解多学科临终关怀团队工作的医疗服务提供者更有可能将患者和照料者转介至适当的临终关怀护理。
