McMillan S C, Mahon M
University of South Florida, College of Nursing, Tampa 33612.
Cancer Nurs. 1994 Feb;17(1):52-60.
The purpose of this study was to evaluate the patient's quality of life as perceived by the patient and primary caregiver at admission and after hospice services had been implemented. The sample consisted of newly admitted patients and their primary caregivers. Thirty-one patient/caregiver dyads were included in the study. The patient's quality of life was assessed using the Sendera Quality of Life Index (SQLI), a 25-item visual analogue scale. Total scores may range from 0 to 100. The SQLI was administered to both patients and caregivers at admission and at week 3 after hospice services were implemented. Although there was no significant difference in the patients' mean scores from admission to week 3 (45.2 to 45.7), 50% of patients did report an improvement in quality of life over the 3-week period. Caregivers reported a significant increase in the patient's quality of life from admission to week 3 (means 47 to 53). The correlations between patient and caregiver scores for admission (r = 0.45) and week 3 (r = 0.39) were moderate. Results show that hospice services may have a positive influence on some aspects of quality of life for some persons who are near death. Further research is needed to explore variables that are most influenced by hospice services.
本研究的目的是评估患者及其主要照顾者在入院时以及临终关怀服务实施后所感知到的患者生活质量。样本包括新入院患者及其主要照顾者。31对患者/照顾者组合被纳入研究。使用森德拉生活质量指数（SQLI）对患者的生活质量进行评估，这是一个包含25个项目的视觉模拟量表。总分范围可能为0至100分。在入院时以及临终关怀服务实施后的第3周，对患者和照顾者都进行了SQLI评估。虽然从入院到第3周患者的平均得分没有显著差异（从45.2分至45.7分），但50%的患者确实报告在这3周期间生活质量有所改善。照顾者报告从入院到第3周患者的生活质量有显著提高（平均分从47分至53分）。入院时患者与照顾者得分之间的相关性（r = 0.45）以及第3周时的相关性（r = 0.39）为中等。结果表明，临终关怀服务可能对一些濒死患者的生活质量的某些方面有积极影响。需要进一步研究以探索受临终关怀服务影响最大的变量。
