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成人重度创伤性脑损伤后长期家庭功能的指标

Indicators of long-term family functioning following severe traumatic brain injury in adults.

作者信息

Douglas J M, Spellacy F J

机构信息

School of Communication Disorders, La Trobe University, Melbourne, Australia.

出版信息

Brain Inj. 1996 Nov;10(11):819-39. doi: 10.1080/026990596123936.

Abstract

This study investigated the degree of association between four sets of predictor variables (demographic, injury-related, patient functioning, and caregiver functioning variables) and the criterion variable of long-term family functioning following severe traumatic brain injury (TBI). Thirty families participated in the study and a minimum of 3.5 years had elapsed since the time of injury. The mean length of post-traumatic amnesia (PTA) for the brain-injured individuals was 92.4 days. Data collection took place in the family home and both the brain-injured family members and primary caregivers were involved. Standard regression analyses revealed that two sets of variables accounted for a significant amount of variance in long-term family functioning. The largest amount of variance, 55% (44% adjusted), was accounted for by the caregivers' self-report variables which measured caregivers' depression, social support, and coping as well as caregivers' preceptions of patient competency. Overall, measures of severity of injury (PTA), residual neurobehavioural function, and adequacy of social support for caregivers proved to be reliable and significant indicators of family functioning. These findings are discussed with respect to their implications for service delivery and long-term provision of support for caregivers of severely brain-injured individuals living with their families.

摘要

本研究调查了四组预测变量(人口统计学变量、损伤相关变量、患者功能变量和照顾者功能变量)与重度创伤性脑损伤(TBI)后长期家庭功能这一标准变量之间的关联程度。30个家庭参与了该研究,自受伤之时起至少已过去3.5年。脑损伤个体的创伤后遗忘(PTA)平均时长为92.4天。数据收集在家庭住所进行,脑损伤家庭成员和主要照顾者均参与其中。标准回归分析表明,两组变量在长期家庭功能方面解释了大量的方差。方差占比最大的是照顾者的自我报告变量,占55%(调整后为44%),这些变量测量了照顾者的抑郁、社会支持、应对方式以及照顾者对患者能力的认知。总体而言,损伤严重程度(PTA)、残留神经行为功能以及照顾者社会支持充足性的测量结果被证明是家庭功能的可靠且重要指标。针对这些发现对为与家人共同生活的重度脑损伤个体的照顾者提供服务和长期支持的意义进行了讨论。

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