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严重脑损伤患者家庭功能:与照顾者负担、感知社会支持及生活质量的相关性

Family functioning in severe brain injuries: correlations with caregivers' burden, perceived social support and quality of life.

作者信息

Tramonti Francesco, Bonfiglio Luca, Di Bernardo Carolina, Ulivi Chiara, Virgillito Alessandra, Rossi Bruno, Carboncini Maria Chiara

机构信息

a Clinical Psychology Unit , Neuroscience Department, Azienda Ospedaliero-Universitaria Pisana , Pisa , Italy.

b Neurorehabilitation Unit, Neuroscience Department , Azienda Ospedaliero-Universitaria Pisana , Pisa , Italy.

出版信息

Psychol Health Med. 2015;20(8):933-9. doi: 10.1080/13548506.2015.1009380. Epub 2015 Feb 10.

Abstract

Severe brain injuries have long-term consequences on functional status and psychosocial functioning. Family life can be greatly influenced as well, and features of high caregiver burden can emerge. Although the data on caregivers' distress are constantly increasing, less information is available about the role of family functioning. Thirty caregivers of hospitalised patients with severe brain injuries received questionnaires for the evaluation of caregiver burden, family functioning and perceived social support. A semi-structured interview was performed for the evaluation of quality of life. Family cohesion and adaptability positively correlated with caregivers' quality of life and perceived social support. Partner caregivers' scores were significantly higher on the time-dependent burden than those of sons and daughters, whereas the latter scored higher on the emotional burden.

摘要

严重脑损伤会对功能状态和心理社会功能产生长期影响。家庭生活也会受到很大影响,可能会出现高照顾负担的特征。尽管关于照顾者困扰的数据不断增加,但关于家庭功能作用的信息却较少。30名住院严重脑损伤患者的照顾者收到了用于评估照顾者负担、家庭功能和感知社会支持的问卷。进行了半结构化访谈以评估生活质量。家庭凝聚力和适应性与照顾者的生活质量和感知社会支持呈正相关。伴侣照顾者在时间依赖性负担方面的得分显著高于子女照顾者,而后者在情感负担方面得分更高。

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