Altmann U, Katz F R, Tafazzoli A G, Haeberlin V, Dudeck J
Arbeitsgruppe zur Koordination Klinischer Krebsregister, Universität Giessen, Germany.
Proc AMIA Annu Fall Symp. 1996:512-6.
German hospital tumor registries play an active role in the treatment of cancer patients. Besides the documentation of the course of a disease, they directly support medical treatment and follow-up care over a long period. As the treatment of oncologic patients is a shared multidisciplinary task, the availability of information is one of the most valuable outputs. Therefore, the documentation has to be integrated into the medical treatment, which only can be achieved when useful services are based on it. Since 1983 the basis of the documentation has been a uniform basic data set which was revised in 1990 and, according to be requirements mentioned above, allows detailed documentation, especially of therapy. During the last four years a new documentation system for tumor diseases has been developed and was implemented in 30 hospital tumor registries by the "Arbeitsgruppe zur Koordination Klinischer Krebsregister". The so-called "Giessener Tumordokumentationssystem" (GTDS) is the basis of the work in those registries. In this paper the functions and services which were implemented in order to support the individual treatment of oncologic patients and the methods of collecting and delivering that information to the physician are presented.
德国医院肿瘤登记处在癌症患者的治疗中发挥着积极作用。除了记录疾病进程外，它们还长期直接支持医疗治疗和后续护理。由于肿瘤患者的治疗是一项多学科共同承担的任务，信息的可用性是最有价值的成果之一。因此，记录必须融入医疗治疗中，而这只有在基于记录提供有用服务时才能实现。自1983年以来，记录的基础是一个统一的基本数据集，该数据集于1990年进行了修订，并根据上述要求允许进行详细记录，尤其是治疗方面的记录。在过去四年中，一个新的肿瘤疾病记录系统得以开发，并由“临床癌症登记协调工作组”在30个医院肿瘤登记处实施。所谓的“吉森肿瘤记录系统”（GTDS）是这些登记处工作的基础。本文介绍了为支持肿瘤患者个体治疗而实施的功能和服务，以及收集和向医生提供该信息的方法。
