Wolff J E, Däumling E, Dirksen A, Dabrock A, Hartmann M, Jürgens H
Kinderonkologie, Universitätskinderklinik Münster.
Klin Padiatr. 1996 Sep-Oct;208(5):294-8. doi: 10.1055/s-2008-1046486.
An instrument to measure quality of life in multicentric pediatric studies in German language was missing yet. The FMH measures the capability for daily life actions with 56 items like "can walk without aids" or "earns money". It was normalized with 971 persons (45.5% female) aging between 0 and 102 years resulting in age-dependent percentiles. The retest-reliability-coefficient is 0.99. The validity was tested in 10 brain tumor patients: there was a good agreement with the IQ (r = 0.7) and with a semiquantitative assessment by a physician (p < 0.001).
然而,尚缺乏一种用于多中心儿科研究中测量德语版生活质量的工具。功能独立性测量(FMH)通过56个项目来衡量日常生活活动能力,如“无需辅助就能行走”或“挣钱”。它在971名年龄在0至102岁之间的人群(45.5%为女性)中进行了标准化,得出了与年龄相关的百分位数。重测信度系数为0.99。在10名脑肿瘤患者中测试了其效度:与智商(r = 0.7)以及医生的半定量评估之间有良好的一致性(p < 0.001)。