Harrison M B, Juniper E F, Mitchell-DiCenso A
Loeb Research Institute, Clinical Epidemiology Unit, Ottawa Civic Hospital, Ontario, Canada.
Can J Nurs Res. 1996 Fall;28(3):49-68.
Quality of life has emerged as an important concept and outcome in health and health care. Policy-makers, researchers, clinicians, and the public at large consider perceived quality of life to be an important dimension of the health of a population or an individual. The nature of nursing is such that many of its anticipated outcomes relate to improvement in the quality of life of individuals and populations. There continues to be debate about the actual definition of quality of life, and a concept that is difficult to define will naturally pose challenges to measurement. This has not impeded the proliferation of quality-of-life instruments, since the concept is recognized as an increasingly important clinical and research outcome. Progress has been made in clarifying and operationalizing the concept. We propose a conceptual viewpoint that separates what quality of life is from what contributes to quality of life. This will assist nurse researchers planning to use quality of life as an outcome in evaluating nursing interventions. In clinical or research situations, for the purposes of measurement, an operational definition of quality of life stems from a definition of health. From this is drawn a definition of health-related quality of life (HRQL). For the purpose of outcome measurement, the operational definition relates to the domains important to the study population and the particular health intervention under study. Issues that arise in the measurement of HRQL are also presented.
生活质量已成为健康及医疗保健领域的一个重要概念和成果。政策制定者、研究人员、临床医生以及广大公众都认为,感知到的生活质量是人群或个体健康的一个重要维度。护理工作的性质决定了其许多预期成果都与改善个体和人群的生活质量有关。关于生活质量的实际定义仍存在争议,而一个难以定义的概念自然会给测量带来挑战。这并未阻碍生活质量评估工具的大量涌现,因为该概念被公认为是一个日益重要的临床和研究成果。在阐明和实施该概念方面已取得了进展。我们提出一种概念性观点,将生活质量是什么与影响生活质量的因素区分开来。这将有助于计划将生活质量作为评估护理干预措施成果的护理研究人员。在临床或研究情境中,为了进行测量,生活质量的操作性定义源自健康的定义。由此得出健康相关生活质量(HRQL)的定义。为了进行成果测量,操作性定义涉及对研究人群以及所研究的特定健康干预措施重要的领域。还介绍了在HRQL测量中出现的问题。