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倡导:癌症幸存者的基石。

Advocacy: the cornerstone of cancer survivorship.

作者信息

Clark E J, Stovall E L

机构信息

Diagnostic and Therapeutic Services, Albany Medical Center, NY 12208, USA.

出版信息

Cancer Pract. 1996 Sep-Oct;4(5):239-44.

PMID:9004569
Abstract

PURPOSE

This article describes a cancer-related advocacy skill set that can be acquired through a learning process.

OVERVIEW

Cancer survivorship is a process rather than a stage or time point, and it involves a continuum of events from diagnosis onward. There exists little consensus about what underlying processes explain different levels of long term functioning, but skills necessary for positive adaptation to cancer have been identified from both the professional literature and from the rich experiences of cancer survivors.

CLINICAL IMPLICATIONS

Healthcare practitioners need to be more creative and assertive in fostering consumer empowerment and should incorporate advocacy training into care plans. Strategies that emphasize personal competency and increase self-advocacy capabilities enable patients to make the best possible decisions for themselves regarding their cancer care. In addition, oncology practitioners must become informed advocacy partners with their patients in the public debate about healthcare and cancer care delivery.

摘要

目的

本文描述了一种可通过学习过程获得的与癌症相关的倡导技能组合。

概述

癌症生存是一个过程,而非一个阶段或时间点,它涉及从诊断开始的一系列连续事件。对于哪些潜在过程能够解释不同水平的长期功能,目前几乎没有共识,但从专业文献以及癌症幸存者的丰富经验中,已经确定了积极适应癌症所需的技能。

临床意义

医疗从业者在促进患者赋权方面需要更具创造性和主见性,并应将倡导培训纳入护理计划。强调个人能力并提高自我倡导能力的策略,能使患者就自身癌症护理做出最适合自己的决策。此外,肿瘤学从业者必须在关于医疗保健和癌症护理服务的公开辩论中,成为患者明智的倡导伙伴。

相似文献

1
Advocacy: the cornerstone of cancer survivorship.倡导:癌症幸存者的基石。
Cancer Pract. 1996 Sep-Oct;4(5):239-44.
2
Survivorship perspectives and advocacy.生存视角与倡导。
J Clin Oncol. 2006 Nov 10;24(32):5154-9. doi: 10.1200/JCO.2006.06.5300.
3
Self-advocacy training for cancer survivors. The Cancer Survival Toolbox.癌症幸存者的自我倡导培训。癌症生存工具箱。
Cancer Pract. 1999 Nov-Dec;7(6):297-301. doi: 10.1046/j.1523-5394.1999.76008.x.
4
Nurse experiences as cancer survivors: part I-personal.护士作为癌症幸存者的经历:第一部分——个人经历。
Oncol Nurs Forum. 2004 May;31(3):523-30. doi: 10.1188/04.ONF.523-530.
5
Opioids and cancer survivors: issues in side-effect management.阿片类药物与癌症幸存者:副作用管理中的问题
Oncol Nurs Forum. 2008 Nov;35 Suppl:13-9. doi: 10.1188/08.ONF.S1.13-19.
6
Current issues of cancer survivorship.癌症幸存者的当前问题。
Oncology (Williston Park). 1989 Jul;3(7):85-8; discussion 89-91, 94-5.
7
The voice of cancer.癌症之声
Plast Surg Nurs. 1999 Fall;19(3):127-9.
8
Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study.对接受癌症治疗的儿童进行心理教育团体干预的评估:一项描述性试点研究。
Psychooncology. 2009 Jul;18(7):762-6. doi: 10.1002/pon.1470.
9
Cancer survivorship and agency model: implications for patient choice, decision making, and influence.癌症幸存者与能动性模型:对患者选择、决策制定及影响力的启示
Health Commun. 2003;15(2):193-202. doi: 10.1207/S15327027HC1502_7.
10
Cancer survivors and quality of life: a critical review of the literature.癌症幸存者与生活质量:文献的批判性综述
Oncol Nurs Forum. 2000 Oct;27(9):1395-401.

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患者是否普遍能够进行自我倡导?澳大利亚妊娠和产后心脏病患者的经历。
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Reducing distress and depression in cancer patients during survivorship.减少癌症患者生存期间的痛苦和抑郁。
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International Framework for Cancer Patient Advocacy: Empowering Organizations and Patients to Create a National Call to Action on Cancer.癌症患者倡导国际框架:赋能组织和患者发起全国性癌症行动呼吁。
J Glob Oncol. 2015 Oct 28;1(2):83-91. doi: 10.1200/JGO.2015.000398. eCollection 2015 Dec.
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Theoretical to Tangible: Creating a Measure of Self-Advocacy for Female Cancer Survivors.从理论到实践:为女性癌症幸存者创建自我倡导的衡量标准。
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