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临终决策:社区与医学从业者的观点

End-of-life decision-making: community and medical practitioners' perspectives.

作者信息

Steinberg M A, Najman J M, Cartwright C M, MacDonald S M, Williams G M

机构信息

Department of Social and Preventive Medicine, University of Queensland, Herston.

出版信息

Med J Aust. 1997 Feb 3;166(3):131-5. doi: 10.5694/j.1326-5377.1997.tb140042.x.

Abstract

OBJECTIVE

To examine current attitudes and knowledge of the community and medical practitioners in Queensland to end-of-life decisions.

DESIGN

Cross-sectional survey by postal questionnaire.

PARTICIPANTS

387 general practitioners and medical specialists and 910 community members from the Queensland electoral roll.

MAIN OUTCOME MEASURES

Responses to five questions about end-of-life decision-making, and to legislative changes relating to such decisions.

RESULTS

The overall response rate for medical practitioners was 67% and for community members was 53%. 78% of community members (age adjusted) and 54% of doctors thought that a doctor should comply with a patient's request to turn off a life-support system; 68% of doctors through people would still ask to have their life ended even if pain were controlled, compared with 54% of community members; 70% of community members thought the law should be changed to allow active voluntary euthanasia, compared with 33% of doctors; and 65% of community members thought that a doctor should be allowed by law to assist a terminally ill person to die, but only 36% of doctors agreed. 79% of doctors and 75% of community members agreed that people would still ask for assistance to end their lives even if optimal palliative care were freely available.

CONCLUSION

Community members supported greater choice and control over end-of-life decisions, while doctors were less supportive of some of the options canvassed. In a climate of community participation in health care decisions, it is important to better understand the basis and meaning of these different views. Further detailed research is recommended.

摘要

目的

研究昆士兰社区及医学从业者对临终决策的当前态度与知识。

设计

通过邮寄问卷进行横断面调查。

参与者

387名全科医生和医学专家以及910名来自昆士兰选民登记册的社区成员。

主要观察指标

对五个关于临终决策问题的回答,以及对与此类决策相关立法变化的回答。

结果

医学从业者的总体回复率为67%,社区成员为53%。78%的社区成员(年龄调整后)和54%的医生认为医生应遵从患者关闭生命维持系统的请求;68%的医生认为即便疼痛得到控制人们仍会要求结束生命,相比之下社区成员为54%;70%的社区成员认为法律应修改以允许积极自愿安乐死,相比之下医生为33%;65%的社区成员认为法律应允许医生协助绝症患者死亡,但只有36%的医生同意。79%的医生和75%的社区成员同意即便可免费获得最佳姑息治疗,人们仍会寻求协助结束生命。

结论

社区成员支持在临终决策上有更多选择和控制权,而医生对所探讨的一些选项支持度较低。在社区参与医疗决策的氛围下,更好地理解这些不同观点的依据和意义很重要。建议进行进一步详细研究。

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