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“解读”知情同意书。女性对乳腺癌易感性检测的见解。

"Decoding" informed consent. Insights from women regarding breast cancer susceptibility testing.

作者信息

Geller G, Strauss M, Bernhardt B A, Holtzman N A

出版信息

Hastings Cent Rep. 1997 Mar-Apr;27(2):28-33.

PMID:9131350
Abstract

Cancer susceptibility testing is likely to become routine in medical practice, despite many limitations and unanswered questions. These uncertainties greatly complicate the process of informed consent, creating an excellent opportunity to reconsider exactly how it should be conducted. Research with women's reactions to the availability of genetic susceptibility testing for breast cancer dramatically underscores that informed consent ought to be highly individualized, taking care to discern what patients believe about the disease and its causes and what role they want their physician to play.

摘要

尽管存在许多局限性和未解决的问题,但癌症易感性检测在医学实践中可能会成为常规操作。这些不确定性使得知情同意过程变得极为复杂,为重新思考其具体实施方式创造了绝佳契机。针对女性对乳腺癌基因易感性检测可及性的反应所开展的研究显著强调,知情同意应该高度个体化,要注意辨别患者对疾病及其病因的看法,以及他们希望医生扮演的角色。

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