Peto V, Fitzpatrick R, Jenkinson C
Department of Public Health, University of Oxford, Headington, UK.
Disabil Rehabil. 1997 Mar;19(3):97-103. doi: 10.3109/09638289709166833.
A sample of people with Parkinson's disease (PD), identified from a 1992 Northampton Health Authority (NHA) Prevalence Study, and currently registered with a general practitioner, completed a postal survey. People with PD reported considerably worse health status than other individuals of the same age across a wide range of health-related dimensions. Health status was worse in those with longer-standing illness. The Parkinson's disease questionnaire (PDQ-39) identified particular problems associated with PD. The health status for those seen most recently by various health-related professionals was generally worse. Access to various services continues to be a problem for a substantial minority of people with PD. The health status of those reporting dissatisfaction with access to services was generally worse. More research, using feasible and relevant outcome measures, is needed to assess different interventions, and to assist in the determination of appropriate services.
从1992年北安普敦卫生局（NHA）患病率研究中识别出的、目前在全科医生处注册的帕金森病（PD）患者样本完成了一项邮寄调查。与同年龄段的其他个体相比，PD患者在广泛的健康相关维度上报告的健康状况要差得多。病程较长的患者健康状况更差。帕金森病问卷（PDQ - 39）识别出了与PD相关的特定问题。各类健康相关专业人员最近看过的患者健康状况总体更差。对于相当一部分PD患者来说，获得各类服务仍然是个问题。报告对获得服务不满意的患者健康状况总体更差。需要开展更多研究，采用可行且相关的结果指标，以评估不同干预措施，并协助确定合适的服务。
