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帕金森病患者功能与幸福感简短测量方法的开发与验证

The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease.

作者信息

Peto V, Jenkinson C, Fitzpatrick R, Greenhall R

机构信息

Department of Public Health and Primary Care, Radcliffe Infirmary, Oxford, UK.

出版信息

Qual Life Res. 1995 Jun;4(3):241-8. doi: 10.1007/BF02260863.

DOI:10.1007/BF02260863
PMID:7613534
Abstract

Parkinson's disease is a common degenerative neurological condition. A number of general health status measures exist but these may not address areas salient to specific diseases. We report here the development and validation of a short 39 item health status questionnaire for use in Parkinson's disease. Questionnaire items, generated from in-depth interviews with people with Parkinson's disease, were developed into a 65 item questionnaire. Data from a postal survey using the 65 item questionnaire were statistically analysed to produce a shorter questionnaire with 39 items and eight scales addressing different dimensions of Parkinson's disease. A second postal survey was conducted in order to assess the reliability and validity of the new 39 item questionnaire. The final questionnaire, referred to here as the 39 item Parkinson's Disease Questionnaire (PDQ-39), proved to have satisfactory internal and test-retest reliability, and construct validity in relation to other measures, reported by respondents with Parkinson's disease.

摘要

帕金森病是一种常见的退行性神经疾病。现有的一些一般健康状况测量方法可能无法涉及特定疾病的突出领域。我们在此报告一份用于帕金森病的简短的39项健康状况问卷的编制及验证情况。通过对帕金森病患者进行深入访谈生成的问卷项目,被编制成一份65项问卷。对使用该65项问卷进行的邮寄调查数据进行统计分析,以生成一份包含39项且有八个量表的更简短问卷,这些量表涉及帕金森病的不同维度。为评估这份新的39项问卷的信度和效度,又进行了一次邮寄调查。最终的问卷,即此处所说的39项帕金森病问卷(PDQ - 39),在帕金森病患者的报告中,被证明具有令人满意的内部信度、重测信度以及与其他测量方法相关的结构效度。

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