Markell M S, DiBenedetto A, Maursky V, Sumrani N, Hong J H, Distant D A, Miles A M, Sommer B G, Friedman E A
Department of Renal Medicine, SUNY Health Science Center at Brooklyn 11203, USA.
Am J Kidney Dis. 1997 Jun;29(6):881-7. doi: 10.1016/s0272-6386(97)90462-5.
Studies of dialysis patients report unemployment rates of 60% to 75%; however, it is generally believed that following transplantation, improvement in well-being and removal of time constraints imposed by the dialytic regimen afford improvement in employment status. We studied 58 stable renal transplant recipient attending an outpatient transplant clinic by questionnaire, administered anonymously. Only 25 (43%) of the patients were currently employed. Employed and unemployed patients did not differ when compared for age, gender, race, cause of renal disease, type of transplant or prior dialysis, time on dialysis or time since transplantation, years of education, or prestige score or classification ("blue collar" v "white collar") of prior job. In the employed group, 24 (96%) patients had worked before developing kidney disease compared with 23 (70%) patients in the unemployed group (P < 0.05). While on dialysis, 19 (79%) of the employed patients continued working compared with 10 (30%) of the unemployed patients (P < 0.005). Major reasons for discontinuing work after starting dialysis for both groups were subjective illness (feeling too sick, 51%), followed by interference of the dialysis regimen with time necessary for work (32%). Only 15% of the previously employed patients did not work after transplantation because of feeling too sick. By multiple logistic regression, the strongest predictors of employment posttransplant were being more than 1 year posttransplant (odds ratio, 2.35; 95% confidence interval, 1.01 to 5.5) and having been employed before transplantation (odds ratio, 3.79; 95% confidence interval, 1.60 to 9.02). Over half of the unemployed patients (20 [61%]) expressed interest in job training. Eighty percent to 90% of patients in both groups were insured by Medicare, with the second greatest number insured by Medicaid. Of the 15 unemployed patients insured by Medicaid, 67% reported that their decision not to work was related to fear of losing Medicaid benefits because they could not afford medications without it. Despite no difference in actual type of insurance carried, 17 (51%) of the unemployed patients believed their health insurance coverage was inadequate compared with four (12%) of the employed patients (P = 0.005, chi-squared test). Unemployment remains a significant problem for our population of inner-city renal transplant recipients. Attention to job retention or retraining during the early renal disease and dialysis therapy period may promote better rehabilitation following transplantation. However, for this population, with limited employment opportunities, removal of disincentives to work, including loss of Insurance and Inability to pay for medications, will be necessary before we can provide optimal rehabilitation for renal transplant recipients from all social strata.
对透析患者的研究报告显示,其失业率在60%至75%之间;然而,人们普遍认为,移植后,幸福感的提升以及透析治疗方案所带来的时间限制的消除会使就业状况得到改善。我们通过匿名问卷调查的方式,对58名在门诊移植诊所就诊的稳定肾移植受者进行了研究。目前只有25名(43%)患者有工作。在年龄、性别、种族、肾病病因、移植类型或既往透析情况、透析时间或移植后时间、受教育年限、或既往工作的声望评分或分类(“蓝领”对“白领”)方面,有工作和无工作的患者并无差异。在有工作的组中,24名(96%)患者在患肾病之前就有工作,而在无工作的组中这一比例为23名(70%)患者(P<0.05)。在透析期间,19名(79%)有工作的患者继续工作,而无工作的患者中这一比例为10名(30%)(P<0.005)。两组患者开始透析后停止工作的主要原因是主观上的疾病感受(感觉身体过于不适,占51%),其次是透析方案干扰了工作所需时间(占32%)。之前有工作的患者中,只有15%在移植后因感觉身体过于不适而没有工作。通过多元逻辑回归分析,移植后就业的最强预测因素是移植后超过1年(优势比为2.35;95%置信区间为1.01至5.5)以及移植前有工作(优势比为3.79;95%置信区间为1.60至9.02)。超过一半的无工作患者(20名[61%])表示对职业培训感兴趣。两组中80%至90%的患者由医疗保险承保,其次数量最多的是由医疗补助承保。在15名由医疗补助承保的无工作患者中,67%报告称他们不工作的决定与担心失去医疗补助福利有关,因为没有医疗补助他们就负担不起药物费用。尽管实际所拥有的保险类型并无差异,但17名(51%)无工作患者认为他们的医疗保险覆盖不足,而有工作的患者中这一比例为4名(12%)(P = 0.005,卡方检验)。对于我们市中心的肾移植受者群体来说,失业仍然是一个重大问题。在肾病早期和透析治疗期间关注工作保留或再培训,可能会促进移植后的更好康复。然而,对于这个就业机会有限的群体,在我们能够为所有社会阶层的肾移植受者提供最佳康复之前,有必要消除阻碍工作的因素,包括失去保险和无力支付药物费用等问题。