Meadows L M, Lackner S, Belic M
Department of Family Medicine, University of Calgary, Alberta.
Clin Nurs Res. 1997 May;6(2):156-70. doi: 10.1177/105477389700600205.
Although research into the etiology of irritable bowel syndrome (IBS) is extensive, this is not true for the patient experience of IBS. International population studies indicate that 15-20% of persons suffer from IBS. IBS is one of the eight most common somatic symptom complexes that account for 23% of visits to primary care physicians. This article details the journey of IBS sufferers in their attempt to understand and manage their illness through documenting patient perceptions of the origin of the illness, their search for treatment, their present management strategies, and their need for information and control. A grounded theory approach is used. Clinical practice protocols reflect the state of knowledge surrounding IBS: The variables are many and diagnosis and outcomes are uncertain. Further, our data suggest there is a desperate need for support groups and opportunities for patients, physicians, and supportive others to share experiences and concerns.
尽管对肠易激综合征（IBS）病因的研究广泛，但对于IBS患者的体验却并非如此。国际人群研究表明，15%至20%的人患有IBS。IBS是八种最常见的躯体症状复合体之一，占初级保健医生就诊量的23%。本文通过记录患者对疾病起源的看法、他们寻求治疗的过程、他们目前的管理策略以及他们对信息和控制的需求，详细描述了IBS患者试图理解和管理自身疾病的历程。采用了扎根理论方法。临床实践方案反映了围绕IBS的知识状况：变量众多，诊断和结果不确定。此外，我们的数据表明，迫切需要支持小组以及为患者、医生和其他支持人员提供分享经验和担忧的机会。
