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纤维肌痛患者亲属的生活质量和身体功能

Quality of life and physical functioning of relatives of fibromyalgia patients.

作者信息

Neumann L, Buskila D

机构信息

Rheumatic Disease Unit, Soroka Medical Center, Ben-Gurion University, Beer Sheva, Israel.

出版信息

Semin Arthritis Rheum. 1997 Jun;26(6):834-9. doi: 10.1016/s0049-0172(97)80027-3.

Abstract

OBJECTIVES

The quality of life (QOL) and health status of fibromyalgia syndrome (FS) patients is impaired, and may adversely affect their close relatives. The aim of this study was to assess the QOL and physical functioning of relatives of FS patients.

METHODS

A total of 118 relatives (parents, husbands, siblings, and offspring) of 30 FS female patients were evaluated using a QOL scale and the Fibromyalgia Impact Questionnaire (FIQ) and were compared with 124 healthy controls. These measures of functioning and QOL were further studied in relatives with and without FS.

RESULTS

Although the QOL of the relatives was better than that of the FS index women, they were significantly less satisfied than the controls with functioning-related aspects, namely work (job or home), independence, and health (P < .05). Relatives with FS (n = 29) and female relatives (n = 40) reported lower QOL than relatives without FS (n = 89) and male relatives (n = 78), respectively. Similarly, physical functioning of relatives, though better than in FS index cases, was significantly worse than in healthy controls. Furthermore, the health status of female relatives and relatives with FS was significantly worse than that of male relatives and relatives without FS, respectively.

CONCLUSIONS

The quality of life and physical functioning of relatives of FS patients were found to be impaired, especially in female relatives and those with undiagnosed FS. This finding may be attributed to the psychological distress in families of FS patients and to the high prevalence (25%) of undiagnosed FS among the relatives.

摘要

目的

纤维肌痛综合征(FS)患者的生活质量(QOL)和健康状况受损,且可能对其近亲产生不利影响。本研究旨在评估FS患者亲属的生活质量和身体功能。

方法

使用生活质量量表和纤维肌痛影响问卷(FIQ)对30例FS女性患者的118名亲属(父母、丈夫、兄弟姐妹和子女)进行评估,并与124名健康对照者进行比较。对患有和未患有FS的亲属的这些功能和生活质量指标进行了进一步研究。

结果

尽管亲属的生活质量优于FS指数女性患者,但他们在与功能相关的方面,即工作(工作或家庭)、独立性和健康方面,比对照组明显更不满意(P <.05)。患有FS的亲属(n = 29)和女性亲属(n = 40)报告的生活质量分别低于未患有FS的亲属(n = 89)和男性亲属(n = 78)。同样,亲属的身体功能虽然优于FS指数病例,但明显比健康对照组差。此外,女性亲属和患有FS的亲属的健康状况分别明显差于男性亲属和未患有FS的亲属。

结论

FS患者亲属的生活质量和身体功能受损,尤其是女性亲属和未确诊FS的亲属。这一发现可能归因于FS患者家庭中的心理困扰以及亲属中未确诊FS的高患病率(25%)。

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