Taverne B
ORSTOM, Burkina Faso.
Sante. 1997 May-Jun;7(3):177-86.
This article is based on an ethnographical study carried out in 1996. It describes and analyzes the methods of medical and family management of HIV-positive and full-blown AIDS patients in the rural environment of Burkinabé. A number of recommendations are made. Biomedical management of these patients is almost non-existent (currently there is no serology or screening advice available at the dispensary). The patient is never informed of an AIDS diagnosis. The relations between the medical personnel and the patients are dominated by a sense of powerlessness and constant fear of infection. None of the traditional doctors of the region admits to treating AIDS although traditional medicine is used throughout the illness. Family management ranges from complete rejection of the patient to supportive but often misdirected care. It is determined by at least five elements: (1) the composition of the family unit and the nature of relations between the sick individual and the rest of the family, (2) the economic status of the patients, his family group and his parents, (3) the initial uncertainties of the diagnosis of the illness, (4) the fear of contagion and (5) the fear of gossip. Management of these patients would be improved by: (1) real access to counseling and screening, (2) the involvement of health workers in this activity and in the notification of the diagnosis to the peripheral medical organizations, (3) the education of the staff about the risks of contamination and care of the terminally ill, (4) reeducation of the public about the non-contagious nature of the sick by personal counseling given by health care professionals and (5) the material support of families. This is of vital importance but is difficult to achieve in the context of chronic poverty.
本文基于1996年开展的一项人种志研究。它描述并分析了布基纳法索农村地区艾滋病毒呈阳性及患有全面艾滋病患者的医疗和家庭管理方法。文中提出了一些建议。对这些患者的生物医学管理几乎不存在(目前诊疗所没有血清学检查或筛查建议)。患者从未被告知艾滋病诊断结果。医务人员与患者之间的关系主要是一种无力感以及对感染的持续恐惧。该地区没有一位传统医生承认治疗艾滋病,不过在整个患病过程中都会使用传统药物。家庭管理从对患者的完全排斥到给予支持但往往方向错误的护理不等。它至少由五个因素决定:(1)家庭单位的构成以及患病个体与家庭其他成员之间关系的性质,(2)患者、其家庭群体及其父母的经济状况,(3)疾病诊断初期的不确定性,(4)对传染的恐惧,以及(5)对流言蜚语的恐惧。通过以下方式可以改善对这些患者的管理:(1)真正能够获得咨询和筛查服务,(2)卫生工作者参与此项活动并将诊断结果通知周边医疗组织,(3)对工作人员进行关于污染风险和临终关怀的教育,(4)通过医护专业人员提供的个人咨询,让公众重新认识患者不具传染性的本质,以及(5)为家庭提供物质支持。这至关重要,但在长期贫困的背景下很难实现。