Holstein M
Park Ridge Center for the Study of Health, Faith, and Ethics, Chicago, Illinois 60611-3215, USA.
Acad Med. 1997 Oct;72(10):848-55.
Americans simultaneously worry about dying and about being tethered to machines that keep them alive beyond a point when life has any meaning. People living with terminal illness often feel isolated from life around them and a burden on those they love; they feel uncertain that their deaths will be relatively free of pain and suffering and that their dignity will be compromised as little as possible. These failings can be remedied. Traditional hospice care and integrating palliative care into the general medical setting are important, but they cannot alone occasion a better dying. The medical community must re-imagine dying and reflect about ways to transform image into reality in practice and in training colleagues and successors. Physicians and others know how to provide care and even improve living when cure is unlikely; the harder task is to respect such care as profoundly as curing. The exigencies of modern medicine, where time is a budgetable commodity, makes caring well for dying patients difficult. Medicine cannot have hegemony over dying and cannot singularly offer people a better death, but it cannot absent itself either. The almost single-minded focus on decision making that has infused conversations about dying and death may divert attention from the attentiveness and loving relationships that are as vital as life's end as at its beginning. Medicine has "colonized" death: It has transformed it into a place where progress in staving it off may appear to be unlimited, and thus it encourages forgetting that death is part of the human condition. The task before medicine, and academic medicine in particular, is to transform death back into a human scale. With all that is available to delay death--but not to make it optional--the most important task is to recover humbleness before an awesome moment and be with the patient, one human being to another, knowing that dying is not always open to solutions.
美国人一方面担心死亡,另一方面又担心被机器束缚,这些机器让他们在生命失去任何意义之后仍维持着生命。身患绝症的人常常感到与周围的生活隔绝,觉得自己是所爱之人的负担;他们不确定自己的死亡是否能相对免于痛苦,也不确定自己的尊严能在多大程度上不受损害。这些不足是可以弥补的。传统的临终关怀以及将姑息治疗融入普通医疗环境都很重要,但仅靠它们并不能带来更好的死亡体验。医学界必须重新构想死亡,并思考如何在实践中以及在培训同事和接班人时将这种构想转化为现实。医生和其他人知道在治愈无望时如何提供护理,甚至改善患者的生活;更艰巨的任务是像重视治愈一样深刻地重视这种护理。现代医学中,时间是一种可预算的商品,这使得悉心照料临终患者变得困难。医学不能主宰死亡,也不能单独为人们提供更好的死亡方式,但它也不能置身事外。在关于死亡的讨论中,几乎一心一意地关注决策可能会转移人们对专注和关爱关系的注意力,而这些关系在生命的起点和终点同样至关重要。医学已经“殖民”了死亡:它将死亡变成了一个似乎在延缓死亡方面取得进展没有限度的地方,因此它促使人们忘记死亡是人类生存状况的一部分。医学,尤其是学术医学面临的任务是将死亡重新拉回到人的尺度。尽管有各种方法可以延缓死亡——但不是让死亡成为可选择的——最重要的任务是在这个可怕的时刻恢复谦卑,陪伴患者,人与人相互陪伴,要知道死亡并不总是有解决办法的。