Horner S D
University of Texas at Austin, School of Nursing 78701-1499, USA.
J Adv Nurs. 1997 Oct;26(4):658-63. doi: 10.1046/j.1365-2648.1997.00232.x.
The purpose of this paper is to present the experience of mothers as they cared for their young children during illness episodes, prior to a diagnosis of asthma in the children. A grounded theory study was conducted with 12 families with asthmatic children, involving three rounds of interviews. In these interviews the mothers revealed that the prediagnosis phase of their children's illness was an overwhelming time for them. Groping in the dark is the core variable that reflects (a) the harrowing experiences of sleepless nights while mothers watched their children struggle to breathe, (b) the wearing toll incurred while helping their children through seemingly unending illnesses, and (c) their increasingly intensified search for answers to resolve their children's health crisis.
本文的目的是呈现母亲们在孩子被诊断出哮喘之前,在孩子患病期间照顾幼儿的经历。对12个有哮喘患儿的家庭进行了扎根理论研究,包括三轮访谈。在这些访谈中,母亲们透露,孩子疾病的诊断前阶段对她们来说是一段极其艰难的时期。“在黑暗中摸索”是核心变量,它反映了:(a) 母亲们看着孩子挣扎呼吸时那些不眠之夜的痛苦经历;(b) 在帮助孩子度过看似没完没了的疾病时所承受的损耗;(c) 她们为解决孩子的健康危机而日益强烈地寻求答案的过程。