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一项从患者角度出发,关于过敏生活体验的探索性研究。

An exploratory study from the patients' perspective of living with allergies.

作者信息

Zernike W, Corish T, Henderson S

机构信息

Division of Nursing Research, Royal Brisbane Hospital, Herston QLD, Australia.

出版信息

J Clin Nurs. 1997 Sep;6(5):371-7.

PMID:9355471
Abstract

Allergic disease is one of the most prevalent chronic medical conditions in the world. Allergen avoidance has been accepted as a form of treatment for allergic disease; however, the success of treatment is often dependent on how patients choose to manage their condition. The purpose of this study was to explore how allergic conditions affect the lives of allergy sufferers and what information they believe would be useful to other allergy sufferers in the management of their allergic condition. Patients suffering from non-life-threatening allergies stated that their allergy affected many aspects of their life, such as their work, their social life, their emotional state, their physical appearance and, hence, their interactions with others. The chronic symptoms of their condition caused the greatest concern to patients. Many of these participants 'accepted their condition' and undertook controlling-measures as part of their daily life. In contrast, patients suffering from life-threatening allergies stated that their allergy did not affect their life. Knowledge of their allergic condition was more important than acceptance. The findings elicited from allergy sufferers identified how nurses can educate patients about their condition and assist them in learning to live with their condition.

摘要

过敏性疾病是世界上最常见的慢性疾病之一。避免接触过敏原已被公认为是一种治疗过敏性疾病的方法;然而,治疗的成功往往取决于患者选择如何应对自己的病情。本研究的目的是探讨过敏状况如何影响过敏患者的生活,以及他们认为哪些信息对其他过敏患者管理自身过敏状况会有所帮助。患有非危及生命过敏症的患者表示,他们的过敏影响了生活的许多方面,如工作、社交生活、情绪状态、外貌,进而影响了他们与他人的互动。病情的慢性症状最令患者担忧。这些参与者中的许多人“接受了自己的病情”,并将控制措施作为日常生活的一部分。相比之下,患有危及生命过敏症的患者表示,他们的过敏并未影响他们的生活。了解自己的过敏状况比接受病情更为重要。从过敏患者那里获得的研究结果明确了护士应如何就患者的病情对其进行教育,并帮助他们学会与病情共处。

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