Michie S, McDonald V, Marteau T M
Psychology and Genetics Research Group, UMDS Guy's Campus, London, UK.
Patient Educ Couns. 1997 Sep-Oct;32(1-2):101-6. doi: 10.1016/s0738-3991(97)00050-5.
The aims of this study are to categorise the key points given in genetic counselling, assess the amount and type of information recalled, and examine the relationships between counsellees' knowledge, satisfaction with information received, the meeting of expectations, concern and anxiety. Because of the variety of consultations, a knowledge questionnaire of the key points was constructed for each individual counsellee, with acceptable inter-rater reliability. The information items judged to be the key points in the consultations were assigned to 13 different content categories. Thirty-two counsellees were sent a questionnaire assessing knowledge and other outcomes two to four weeks after attending a genetic counselling consultation. The mean percentage of key points recalled correctly was 76% (s.d. 17%) with 100% recall for family issues and 68-78% recall for genetic or medical information. Knowledge was not associated with satisfaction with information received nor with level of concern or anxiety following genetic counselling. These results suggest the importance of assessing multiple outcomes of genetic counselling.
本研究的目的是对遗传咨询中给出的关键点进行分类，评估所回忆信息的数量和类型，并研究咨询对象的知识、对所获信息的满意度、期望的达成情况、关注程度和焦虑之间的关系。由于咨询的多样性，为每个咨询对象构建了一份关于关键点的知识问卷，评分者间信度可接受。在咨询中被判定为关键点的信息项目被分配到13个不同的内容类别中。32名咨询对象在参加遗传咨询后的两到四周收到了一份评估知识及其他结果的问卷。正确回忆关键点的平均百分比为76%（标准差17%），其中家庭问题的回忆率为100%，遗传或医学信息的回忆率为68 - 78%。知识与对所获信息的满意度以及遗传咨询后的关注程度或焦虑水平均无关联。这些结果表明评估遗传咨询多种结果的重要性。
